Princess, The Tower @APainPrincess

Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP princessinthetower.org The Tower Joined November 2012

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Princess, The Tower @APainPrincess

4 hours ago

“You don't always have to pretend to be strong, there is no need to prove all the time that everything is going well, you shouldn't be concerned about what other people are thinking. Cry if you need to, it's good to cry out all your tears…” ~ Paulo Coelho #MentalHealthMatters

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Princess, The Tower @APainPrincess

8 hours ago

“#CRPS…unrelenting pain…#allodynia… My body constantly seems to fail me… The truth is #chronicpain is exhausting and I’ve learned that it’s OK to admit it. I’m often tired and sometimes, grumpy… I’m also grateful—I made it to the end of another week.” buff.ly/3WNVFE1

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Princess, The Tower @APainPrincess

12 hours ago

“Driven by a group of anti-opioid zealots, led by Andrew Kolodny, PROP… The result was a guideline that was based purely on belief and devoid of science, and one that ignored even the CDC’s own data…in a form of anti-#opioidhysteria.” buff.ly/HAAoYWV #opioids #ipp #cpp

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Princess, The Tower @APainPrincess

15 hours ago

“I can walk, but I can’t walk very far, and it’s always with #pain and #fatigue. I can stand, just not for very long. Limited as my mobility is, I’m still made to feel like a faker. I don’t look sick enough. I don’t look #disabled enough. I’m too young.” buff.ly/4fz49Gj

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Princess, The Tower @APainPrincess

21 hours ago

“For those of us living with #ChronicPain or illness, this pressure can feel even heavier. Our bodies don’t work the way we’d like…yet the expectations around us don’t disappear… Some days, simply getting through is an achievement in itself.” buff.ly/w2Lcgkd #disability

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Princess, The Tower @APainPrincess

a day ago

“Being in pain 24/7 not only affects you physically, it also affects you emotionally and mentally… It’s hard to live with #ChronicPain, but it’s also hard to see someone you love in pain.” 7 Things We Should Know About Chronic Pain buff.ly/RRg8qFM #CRPS #NeurologicalLyme

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Princess, The Tower @APainPrincess

a day ago

“#ChronicIllness and #disability can impede our authentic selves… One example—my value and love of creativity—my writing and art… #Fatigue levels have been substantially high and make it difficult to function…due to pain and illness… It is a struggle.” buff.ly/eml0UYd

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Princess, The Tower @APainPrincess

a day ago

“It can be incredibly hard with #chronicillness when we gain a new comorbid condition to re-adjust to new limitations on top of our existing ones. We already feel like we adapting and adjusted all we could and we have to start all over again.” buff.ly/nZC41dL #ChronicPain

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Princess, The Tower @APainPrincess

2 days ago

“It’s easy to start comparing yourself to others but it’s so important we try not to… and don’t feel guilty if you have to take a week off because #ChronicPain is not your fault, and you are only hurting yourself when you do too much.” buff.ly/4d8mfxa @sarahlynn358 #cpp

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Princess, The Tower @APainPrincess

2 days ago

“It’s a day-to-day battle… a lot of the time it feels more like just surviving… Pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” buff.ly/4blEHS3 #ChronicallyIll #ChronicPain

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Princess, The Tower @APainPrincess

2 days ago

“MME assumes every patient metabolizes #opioids the same—they don't… For 17% of patients at metabolic extremes, MME is […] clinically irrelevant… MME treats a tolerant patient and opioid-naive as equivalent risks—which is pharmacologically nonsensical.” buff.ly/4T9YG0I

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Princess, The Tower @APainPrincess

2 days ago

“Living with a #chronicillness means adapting all areas of your life around it. It might mean changing how much time you spend with loved ones. This can cause conflict with the people in our lives, as they don’t fully comprehend the impact.” buff.ly/3WhapcH #pwME #pwLC

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Princess, The Tower @APainPrincess

2 days ago

“#Stress isn’t just exhausting mentally… What I needed was extra rests. Instead I kept at my computer—though my body was crying out for me to stop… When I finally did lie down…my symptoms were 3 times worse than they would have been.” buff.ly/SYwfkq9 #chronicillness

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Princess, The Tower @APainPrincess

2 days ago

“As someone with multiple #chronicillness(es) I can sometimes stretch my limitations…but I will crash… This “crash” can last for days or weeks, but I never know in advance how long it will be. It means choosing to expend extra effort is a constant risk.” buff.ly/saToW7A

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Princess, The Tower @APainPrincess

3 days ago

“It is ironic that since I became unwell with two invisible illnesses I have almost become invisible myself. Slowly, bit by bit… It is almost as painful as suffering from the constant pain from #Fibromyalgia.” buff.ly/h0k7fVT @OSufferer #chronicillness #spoonie

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Princess, The Tower @APainPrincess

3 days ago

“People with #chronicpain learn to function while in enough pain to send a person to the ER… They learn to act relatively normal because it makes most uncomfortable to see someone in pain… that day they were stuck in bed, in tears from intolerable pain.” buff.ly/4cTXaFI

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Princess, The Tower @APainPrincess

3 days ago

“When you’re sick day in day out, screens have an emotional function too. They connect you to your (online) community when you’re isolated, they distract you from pain… Your devices let you be a part of the world, albeit from your bed.” buff.ly/X1MitUF #ChronicIllness

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Princess, The Tower @APainPrincess

3 days ago

“Believe people with chronic conditions… I see so many ill people suffering deeply because their families and others think it’s not real, just because they can’t see it… I know they can’t possibly understand…but I wish more would try.” buff.ly/bYTXwuD #invisibleillness

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Princess, The Tower @APainPrincess

3 days ago

“When people do not understand the state I’m in, it makes me feel even worse during a #flareup. So… I accept it and know that it’s temporary. It will pass… I allow myself to rest and retreat, and surround myself with comforting resources.” buff.ly/cgPeDux @AChVoice #cpp

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Princess, The Tower @APainPrincess

4 days ago

“I have flares that last two weeks and others that last upwards of three months… I am left with the “flare hangover” of severe #fatigue and #brainfog… Other times… hospital. I receive infusions/treatments in an effort to break the cycle.” buff.ly/HseoZ2R #ChronicPain