Bleeding and Clotting Disorders Institute @BloodExpertsIL
The Bleeding and Clotting Disorders Institute provides integrated, family-oriented care, treatment and education for persons with blood disorders. ilbcdi.org 427 W Northmoor Rd. Peoria Joined January 2020-
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Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstrate that routine rVWF prophylaxis reduced bleed rate and healthcare resource utilization compared to prior VWD treatments. #VWD #VWF tandfonline.com/doi/full/10.10…
Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience experts, must be incorporated into cutting-edge research programs from start to finish. ashpublications.org/bloodadvances/…
We are excited to showcase the BCDI 2024 Annual Report! This is our longest newsletter yet, with 24 pages devoted strictly to everything surrounding BCDI and our incredible community in 2024. Our 2024 Annual Report can be read in full right here: ilbcdi.org/about-us/newsl…
From all of us at BCDI- We wish you a Merry Christmas and Happy Holidays!!
ATIII deficiency can significantly increase thrombosis risk, particularly VTE. Recurrent thrombosis in 58.6% of patients (44.8%) despite AC. 35% of patients received ATIII concentrate and 84% of these for prophylaxis. jthjournal.org/article/S1538-…
Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi when F8 prophylaxis alone was insufficient. Emi may treat some #VWD @BloodExpertsIL @kanstea #hemophilia journals.lww.com/bloodcoagulati…
Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!
Today is #WorldThrombosisDay! 1 in 4 people worldwide die of conditions caused by thrombosis, otherwise known as blood clots. BCDI is raising awareness about blood clot risk factors, signs and symptoms. Learn more by visiting ilbcdi.org/patient-info/d…. #TheBloodExperts
At @nbd_foundation's #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award! To learn more about the NBDF Lifetime Achievement Award, visit: ilbcdi.org/news/dr-tarant…
Patient-reported outcomes are essential to optimize care in #sicklecelldisease Happy to share our pilot study. Much more work is needed! @BloodExpertsIL ashpublications.org/bloodadvances/…
✨BCDI Family Day is in full swing!! ✨ Our patients and their families are joining us for a day full of carnival fun, education from our expert staff, and delicious food from local vendors!
Happy to share! Our article received enough citations to be a #TopCitedArticle @haemophilia_jnl Great working with a dedicated team. onlinelibrary.wiley.com/doi/full/10.11… @BloodExpertsIL
The inaugural BCDI Golf Outing is coming up on August 29 at Mt. Hawley Country Club! You won't want to miss this event, which is a four-person scramble format and will tee-off at 10 a.m. For more information & to register, please visit bcdigolf.cbo.io
Insightful master class at @WashUHeme grand rounds by Dr. Tarantino, leading expert in #ITP. Covered the history, treatment modalities, and evidence behind various therapeutics from steroids, splenectomy, IVIg, and rituximab to TPO-RAs. Highlight: ‘How I treat’ @UICOMPeoria
@BloodExpertsIL Founder and ITP expert giving @WashUHeme Grand Rounds tomorrow! Mike is an international thought leader in ITP, and my longtime mentor, colleague, and friend. Join if you can! Would be great to have virtual option @WashUHeme
Please join us tomorrow for our last Heme Grand Rounds for the academic year with Dr. Michael Tarantino from @UICOMPeoria discussing #ImmuneThrombocytopenia. Dr. Tarantino is an expert in bleeding & platelet disorders and we are excited to hear the latest updates in #ITP
Congrats @mariaespanolm for such a thorough and easy-to-understand review of decades of therapeutic advancements in #hemophilia. 👏🏽👏🏽👏🏽🩸🧐The Evolution of Hemophilia Therapeutics: An Illustrated Review - Research and Practice in Thrombosis and Haemostasis rpthjournal.org/article/S2475-…
Happy to share @JonRob08 @BloodExpertsIL The Evolution of Hemophilia Therapeutics: An Illustrated Review sciencedirect.com/science/articl…
Congrats to Dr. Jessica Mistretta @mariaespanolm and colleagues @BloodExpertsIL for our recent report explaining unique challenges with using Altuviiio in a 19-month-old with severe #hemophilia A. doi.org/10.1002/pbc.31…
The May 2024 edition of The BCDI Beacon newsletter is here! To read The BCDI Beacon and sign up to have each edition sent directly to your email, please visit: ilbcdi.org/about-us/newsl…
Today is World Hemophilia Day! Devoted each year on April 17 to those who have hemophilia- a rare condition in which blood cannot clot properly because it lacks adequate blood-clotting proteins. Help spread the world about #WHD2024 and learn more at ilbcdi.org/patient-info/d…
Gabrielle Flores @GabrielleAFlo
11 Followers 107 Following CU Denver alum 🎓 • Access to Care Advocate 👩🏽⚕️🩺 trying to leave the world better than I found it
H R @HMCR111
29 Followers 146 Following
lynn malec @malecly
480 Followers 360 Following pediatric/adult hematologist with hemophilia focus, passionate to improve care for women/girls with bleeding disorders, clinical researcher, proud cheesehead
KBK @kada_benkada
6 Followers 696 Following
ZihuiEnChine @Zihui1688
85 Followers 849 Following 📷 Instagram : https://t.co/dVLT0UI62m 📺 Youtube : https://t.co/U8RVxtMOKl…
Jimmy @JamesMartinCLE
1K Followers 4K Following Hematologist. Interests: #Hematology, #MedEd, #LGBTHealth 🏳️🌈 (he/him)
Duaa Kanan, MD @duaakanan21
366 Followers 497 Following Hematology and Medical Oncology Fellow Physician & Researcher | Founder & Past President of ASCO OSIG | #IMProud
Fatima Khanum @KhanumFatima14
21 Followers 160 Following In love with the Ocean 🌊 good fiction books 📚, Violin 🎻, Lettering and Haematology@ Professor of Haematology
Janani Arunachalam @JananiA779
125 Followers 451 Following IM PGY3 @UConn | Incoming HemeOnc fellow @VCUMassey |Research scholar @UHouston
Ruah Alyamany | رو�... @Ruah_Mahmoud
1K Followers 620 Following Classical (Benign) Hematology, Cellular & Gene Therapy Consultant, and a Platelet Enthusiast 🇸🇦❤️
WashU Medicine Divisi... @WashUHematology
950 Followers 422 Following Division of Hematology at Washington University School of Medicine https://t.co/MAPAAcHLM0
Jake Reeder, PharmD, ... @JakeReederRx
296 Followers 327 Following Critical Care Pharmacist | Kidney🫘 Enthusiast | Mentor | Educator | Genentech US Medical in the Midwest
Abdulsabur Sanni(Abdu... @Dr_AbdulMD
1K Followers 856 Following Heme/onc fellow @UMNHOT. Everythingologist s/p @hcmcim🇺🇸 |First Gen Nigerian 🇳🇬| IMG MD’20🇭🇺.Slytherin by default but hufflepuff at ❤️.Views=mine. He/Him.
Ajnabi @Jaw23316
1 Followers 773 Following
Ryan Rodriguez @factor_ry9n9
0 Followers 48 Following
Ayesha Butt, MD @AyeshaButtMD
3K Followers 3K Following Incoming Heme fellow @yalehemonc| Resident Physician @YaleIMed⬅️Postdoc Researcher @YaleCancer | CFN Leadership Council Member @HTRStoday |Views my own
Hemophilia Welfare So... @hemophilia_jpr
50 Followers 127 Following We Are Connecting Person with HEMOPHILIA Stay connected
theresa hoekstra @theresahoekstr1
2 Followers 421 Following
Hope Edmunds @Sicanguhope
13 Followers 146 Following “Our lives begin to end the day we become silent about things that matter.”-MLK Jr. ~Activist ~Graduate Student ~Mom ~Neurodivergent
Dr.Je👩🏻⚕�... @Dr_Je20
346 Followers 1K Following “لا يمكنك أن تكون طبيبًا جيدًا بدون معاناة” اللهم اجعل #الطب شفيعاً لي يوم تسألني عن شبابي فيما أفنيته .. #طبيبة🩺👩🏻⚕️
Zahin Islam Rafa, MD @Zahin_rafa
39 Followers 200 Following PGY-2 @UICOMPeoria | Aspiring Oncologist #MedEd #HemeOnc 🎗️🧬
Cassie Rametta @CRcomment
502 Followers 882 Following Collaborate with PACE - adding value & the highest level of integrity to your continuing healthcare education. Tweets are my own, enjoy! #HCSM
د مازن الما�... @43_mma
408 Followers 1K Following IM/Adult Hematology Consultant استشاري أمراض الباطنة والدم للكبار (اللهم لا تؤاخذني بما يقولون واغفرلي ما لا يعلمون واجعلني خيراً مما يظنون)
Ming Y Lim 明林 @heme_fan
1K Followers 718 Following Classical hematologist, clinical researcher, medical educator, back-of-the-pack runner; [email protected], [email protected], mum of 2. Tweets are my own.
مەردان پەرھ... @MPalihati
219 Followers 3K Following Postdoc @Columbiamed by way of @ClevelandClinic | Hematology, Oncology & Radiology Research 🧫 ☢️ | Uyghur Delicacy & Music Enthusiast | Views = My Own
Blood MedEd @bloodmeded
178 Followers 852 Following Here for sharing information & bringing awareness to 🩸 disorders &🩸diseases. RTs ≠ endorsements. Help us grow, follow us! #hemophilia #cancer #scd #dvt
Laurence Woollard @TheWoollard
1K Followers 614 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofeastanglia | MSc Health Policy @imperialcollege
Nicola Pozzi @LabPozzi
329 Followers 776 Following Associate Professor St. Louis University School of Medicine researching #antiphospholipid Syndrome, mechanisms of blood clotting, next-gen #antithrombotics
Roseanna Sheffield @rosedoster370
4 Followers 155 Following
Sheri vG @sherivangunst
16 Followers 111 Following
Abi @abiguler
75 Followers 1K Following
Hemophilia Federation... @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
Rishabh Singh, MD �... @docrishabhsingh
586 Followers 1K Following Heme/Onc Fellow PGY-4 @IUHemOnc | IM via @UICOMPeoria| MBBS @NairTnmc | @HTRSfellows Council 2024-2026 | Passionate about #ClassicalHeme🩸| He/Him/His |
Andrea Rohman @akrohman69
1 Followers 56 Following
NHF Colorado @NHF_CO
23 Followers 89 Following The CO Chapter of @nhf_hemophilia addresses challenges bleeding disorder patients & their families face through education, advocacy, and empowerment.
HEMLIBRA® (emicizuma... @HemlibraHCP
698 Followers 33 Following BOXED WARNING: https://t.co/pC6KuWr5dQ & Full PI: https://t.co/Th809FabMG. US HCPs only. Genentech, member of the Roche Group. Account inactive. Follow us on YouTube & LinkedIn.
BDAI @BDAIllinois
715 Followers 146 Following The Bleeding Disorders Alliance Illinois connects those affected by inherited bleeding disorders and helps them to live life without limitations.
FAIR Time for Women C... @fairtime4women
22 Followers 181 Following FAIR TIME for Women national coalition's goal is diagnosis, care and treatment for women, girls and those identified female at birth with bleeding disorders.
muhamad ramadan @mu95684423
14 Followers 612 Following
BriKarFam @LivWilEB
16 Followers 280 Following
morayma Reyes Gil @ReyesGil74
3 Followers 46 Following
Managing Myeloma @managingmyeloma
4K Followers 3K Following A comprehensive educational initiative for clinicians & patients seeking current and emerging information, tools & resources on multiple myeloma.
Dakota Rosenfelt, Pha... @DRosenfelt
3K Followers 1K Following Sr MSL. Bleeding Disorders Advocate. TEDx Speaker. Created HemoTool. *All opinions mine, represent no org*
ILIANA CHATZIFRAGKOU @ILIANAPhysio
344 Followers 561 Following Clinical Physiotherapist & Swimming teacher level 1. Boccia Referee.Mother of 2.
ATHN @ATHNnews
380 Followers 513 Following At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders.
Maria Español @mariaespanolm
175 Followers 321 Following Classical Hematologist; Hemostasis and thrombosis; patient education. Latina from 🇩🇴. My opinions are my own.
GBD @GatewayHemo
378 Followers 164 Following GBD is a non-profit, community-based organization, dedicated to the advocacy, education & support of families affected by bleeding disorders.
BDAI @BDAIllinois
715 Followers 146 Following The Bleeding Disorders Alliance Illinois connects those affected by inherited bleeding disorders and helps them to live life without limitations.
JTH @JTHjournal
10K Followers 7K Following JTH will no longer have an active presence on X. While this account will remain available as an archive, we will no longer monitor comments or post new content.
NBCA @StopTheClot
7K Followers 1K Following The NATIONAL BLOOD CLOT ALLIANCE works to advance #bloodclot awareness, prevention, diagnosis, & successful treatments to #stoptheclot. RTs ≠ endorsements
Hemophilia Federation... @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
National Bleeding Dis... @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
WFH @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Haemophilia Journal @haemophilia_jnl
2K Followers 296 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
University of Illinoi... @UICOMPeoria
591 Followers 127 Following The University of Illinois College of Medicine Peoria (UICOMP) educates 244 medical students and nearly 300 physician residents annually.
J Roberts @JonRob08
789 Followers 747 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Women and Blood Clots @womenandclots
982 Followers 552 Following Women & Blood Clots is managed by the National Blood Clot Alliance (@stoptheclot). Following/being followed and RTs do not equal endorsement.
PDSA ITP SUPPORT @PDSA_ITP
2K Followers 49 Following Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).
Innovative Hematology @innovativehem
289 Followers 270 Following Innovative Hematology, Inc. (IHI) treats blood disorders—from common to rare—every day. IHI is home to the IHTC.
Blood Journals Portfo... @BloodPortfolio
54K Followers 741 Following Portfolio of ASH journals including Blood, Blood Advances, Blood Global Hematology, Blood ICT, Blood Neoplasia, Blood RCI, and Blood VTH.
ASH @ASH_hematology
73K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
CDC @CDCgov
5.5M Followers 244 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3WzgTrends for United States
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