ChronicallyJess @ChronicallyJess

Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20 chronically-jess.com New Hampshire, USA Joined September 2016

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ChronicallyJess @ChronicallyJess

3 years ago

@ibddoctor Made it home from #aibd in time to see the game and TAYLOR!!!

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Aline Charabaty, MD, FACG, AGAF @DCharabaty

3 years ago

#AIBD2023 Pregnancy in #IBD @ChronicallyJess 💎B clear: healthy🤰🏼on Rx = healthy 👶🏻 🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws” 💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science

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ChronicallyJess @ChronicallyJess

3 years ago

“Our job is to give patients more hope and reduce their fear.” Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023

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ChronicallyJess @ChronicallyJess

3 years ago

You did an amazing job with this article, and inspired me in the process! 💜

Katie Dunleavy @dunleavy_katie

3 years ago

Last year at @VindicoMedEd #IBDFellowsSummit @ChronicallyJess inspired this @AmCollegeGastro Magazine article on “Teaching with the Patient Voice” Grateful to have so many patient voices helping #GIFellows learn & grow during training & at conferences!😊 issuu.com/amcollegegastr…

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ChronicallyJess @ChronicallyJess

3 years ago

Patients don’t fail treatments. Let’s commit to stop phrasing it as if they do. It matters!

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ChronicallyJess @ChronicallyJess

3 years ago

@ownyourcrohns speaks about the importance of using anatomically correct visual aids when counseling on surgery as an option to treat #IBD, as it helps the patient to visualize the outcome and aid in decision-making in the process. #aibd2023

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Tina Aswani-Omprakash, MPH @ownyourcrohns

3 years ago

#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉 #AIBD2023 @IBDConference

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Uma Mahadevan @UmaMahadevanIBD

3 years ago

One of the most important things I learned @IBDConference was on panel w/@ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction

ChronicallyJess @ChronicallyJess

3 years ago

@UmaMahadevanIBD @IBDConference @MLongMD Three AMAZING women right there. The #ibd world is so lucky to have you!!

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ChronicallyJess @ChronicallyJess

3 years ago

LOVING convos about fatigue at #aibd2023, but want more about how pts measure fatigue, and how they currently compensate in their life to manage fatigue, because if patients rate their fatigue as improved, but are still opting out of activities, fatigue is not actually improved

Aline Charabaty, MD, FACG, AGAF @DCharabaty

3 years ago

#AIBD2023 @IBDConference #Fatigue in #IBD @HorstIBDDoc Most common Causes ✅Active 🔥 ✅Chronic disease state ✅Psychosocial factors ✅Poor Sleep ✅Anemia ✅Meds How to approach fatigue Differential & treatments👇🏽including life style changes

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ChronicallyJess @ChronicallyJess

3 years ago

@UmaMahadevanIBD @IBDConference @MLongMD Three AMAZING women right there. The #ibd world is so lucky to have you!!

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ChronicallyJess @ChronicallyJess

3 years ago

After being diagnosed with Lyme disease this summer, following development into severe neurological symptoms before I was heard by doctors and properly tested/treated, I’m finally stepping outside of my safe, home-based space to travel to #aibd2023! Feeling thankful to be here ✈️

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ChronicallyJess @ChronicallyJess

3 years ago

What an amazing opportunity for #ibdmoms to create additional research for future parents with #crohns #ulcerativecolitis

PIANO @PIANOIBD

3 years ago

Are you a @PIANOIBD patient and have a study idea? What data have we been collecting from you that would be an interesting question? Let us know on the FAQ page. just click "propose a study ?" @MLongMD @UmaMahadevanIBD @ChronicallyJess @IBDMoms pianostudy.org/faq.php

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ChronicallyJess @ChronicallyJess

3 years ago

@aboutIBD @DrCoreySiegel @aboutIBD - thanks for having me on your podcast! We got to have a really enjoyable conversation and I think that this came out AWESOME! Hats off to you… that’s a lot of work!! #crohns #cdpath

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About IBD (Amber): Writer, Advocate, Podcast Host @aboutIBD

3 years ago

📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. @DrCoreySiegel and @ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128

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ChronicallyJess @ChronicallyJess

4 years ago

@nataliesparacio Great news, Natalie!!! 🎉

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ChronicallyJess @ChronicallyJess

4 years ago

@ownyourcrohns @ibdesis @nataliesparacio @enlightenedlg @Youcantmakethi4 @rebelliousgut @FITWITMD @IBDimmunology @AmirGhaffariMD @ibdgijami Wishing you healing thoughts! Take care of yourself.

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ChronicallyJess @ChronicallyJess

4 years ago

@IBD_Afzali It was so wonderful to meet you, as well! I look forward to seeing you again at future meetings!

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ChronicallyJess @ChronicallyJess

4 years ago

So glad to hear the deepening of discussions into personalization of treatment decision-making. This is a start, with hope to go even further into understanding which treatments may be best based on patient history with treatment. #crohns #uc #AIBD2022 @IBD_Afzali

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Tina Aswani-Omprakash, MPH @ownyourcrohns

4 years ago

Incredible meeting @ChronicallyJess & @UmaMahadevanIBD IRL! And @SCKimCHP @IBD_Afzali seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽 #AIBD2022 @MRegueiroMD @IBDConference

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ChronicallyJess @ChronicallyJess

4 years ago

@LoriPlung Wishing you a speedy recovery, Lori!!

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Crohn's and Colitis Young Adults Network @CCYANetwork

4 years ago

“We getting pulled up tonight” 🎶 When GI docs pull up at #AIBD2022 with patients…@IBDConference @MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD