Ms Egeiro23 @Firewalker223
Navigating life's tapestry through the lens of Spinal Cord Injury & finding little joys along the way. #plants #maths #healing #joy #MagicOfNature egeironaturals.com Scotland, United Kingdom Joined January 2023-
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@COVID19_disease ME/CFS over here, caused by spinal cord injury...so far, I've found Near Infra Red to be a game-changer...It's been found to repair mitochondria, so I tried it & my system responded...I've heard Q10 helps some people too..
"..food doesn't meet our standards..." youtube.com/shorts/fsa0R5I…
@DrLKVaughan "..result in poor quality decisions.." Evidenced by my permanent disability through ICES 3yrs ago . There was no discussion with a consultant, over my MRI images, as i had expected. In fact, they refused to show me my scan images.
@DrLindaDykes @edallen41 @jaydbint People are being permanently disabled by current CES diagnostic parameters. I wish this meme was on the wall when my scan images arrived on someone's computer.. Its time parameters were updated..Also, listen carefully to patients & be mindful they are in unimaginable pain.
@s_boudicca @rospay15 @jaydbint Same (Scotland). I was a self employed Sports & Remedial massage therapist...can no longer work. This story is sadly more common than everyone realises. Best of luck with things 💖💪
@renamemecfs It is very much possible to get better. Have you watched Toby Morrisons YouTube channel CFS Health? 💖 youtube.com/@cfshealth?si=…
The last line "educate the patients". No. Educate medical professionals. 3yrs ago, I presented with CES red flags & was dismissed at several levels (GP & up). Also argued with consultant post MRI & A&E admission. Sent home with painkillers. I'm now permanently disabled..
@jaydbint I always say it’s line with NICE 2018 and the great @DrLindaDykes (literally documented in the notes and on referral) and I am specifically concerned with cauda equina syndrome. Ballsy no when I’ve laid it out so clearly
@jaydbint @richard_morland ...Ps thank you for being a responsible doctor & chasing things up. As well as using your initiative in spotting it in first place! It's heartening to know there are good ones around 💖
@jaydbint I was dismissed with several CES red flags, at several levels 3yrs ago (GP, physio/consultant). I even argued with consultants after A&E admission & mri scan. I'm now permanently disabled! Ironically, I was a professional Sports & Remedial Massage therapist. Can no longer work..
@timricketts_ ...I'm heartened to know there are still good people with integrity around & willing to fight though 💖
@timricketts_ I wish the people who make life changing health decisions could go in front of the people affected by their decisions...eg completely avoidable permanent disability caused by ignored spinal cord injury...there must be many stories like I mention, sadly...
@doctorcaldwell @peter__duffy @NHSwhistleblowr @LuiForni @Siggers1000 @pressjournal ...I'm heartened to hear there are still good people around though,...can they not all create a board of goodness & go to the press...the patients could join in 😉😊
@doctorcaldwell @peter__duffy @NHSwhistleblowr @LuiForni @Siggers1000 @pressjournal I saw excellent teamwork btwn NHSHighland & GreatrGlas (Paisley) in causing permanent disability through spinal cord injury, which i flagged as medical emergency. Complaint responses included blatant lies & gaslighting. I then had to also fight Government (2yrs) for assistance...
@JamesTitcombe There's definitely no accountability sadly. Speaking as former patient who complained to 2 separate Scottish boards & received blatant lies & gaslighting, after permanent spinal cord injury which could've been avoided.
@czbikerchick They're cowards. It's sad that the few good medical people around get bullied by such gutless wonders. I wish they could stand together & revolt 😂 I'm glad there are some good people still on Earth though & i try to remember it when feeling disheartened 💖 Others kindness helps.
@czbikerchick You're such a sweetheart Dana. Thank you for your kind words. Even just a small acknowledgement of my injury makes a huge difference in how I feel. Medical professionals should take heed 😂. You've spoken more sense than I've heard in 3yrs...I'll maybe look at trials 😉💖
@czbikerchick Thank you Dana. I fought all the way from GP to consultant level. Argued/advocated with all of them. Then spent 2yrs fighting authorities for help I needed. I'm resting this Summer but will pick it back up later. I have all the time in the world 😂 Sadly, I've seen I'm not alone
@czbikerchick I complained formally in writing to 2 boards & argued back & forth with letters, not accepting their responses. If my mental health was stronger, I would've taken it to Ombudsman. Might yet, I've no respect for their time constraints when my injury is permanent.
@czbikerchick Can sympathise 💖 I have permanent spinal injury after not being listened to 3yrs ago. Discharged with painkillers instead of having urgent surgery. My medical notes were all full of anomalies & lies. I complained & was fed blatent lies there too. NHS arrogance is immeasurable.
@ollieburtonmed Well, if ever you do GP work, please make sure you expedite someone to A&E if they present with saddle parasthesia, back & leg pain...& please remind people the importance of the Bedside Manner. Inducing stress during unwell times does not assist recovery 💖
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