MND Nottinghamshire Branch @MNDNotts
The Nottinghamshire Branch of the Motor Neurone Disease Association has the sole aim of serving all those people in the area affected by Motor Neurone Disease mnd-notts.org.uk Nottinghamshire Joined June 2013-
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We’re helping gather views from people with MND/ALS and their carers across Europe to improve care and support. Your experiences will help shape a new care pathway and highlight what really matters. The survey is anonymous, easy to complete, and available in many languages—please take part or share with others: 🔗ec.europa.eu/eusurvey/runne…
Our research shows that average wait times for genetic testing for people with MND have dropped from 18 months to around three months. The decrease follows more than a year of engagement by Association teams with NHS England, raising concerns about the impact delays in genetic testing have on people with MND. Read more. 🔗 mndassociation.org/media/latest-n…
On Sunday, Joff, who has MND, appeared on BBC Spotlight to share why he’s determined to fundraise for the Motor Neurone Disease Association during one of his many cold plunge fundraisers! Joff has raised over £50,000 since his diagnosis in October. Watch his feature now! ⬇️ 🔗justgiving.com/page/jon-mache…
Sharing this on behalf of Michael Cole—they’re doing amazing work for MND Association: socialsync.app/fundraiser/cr-…
Sharing this on behalf of Michael Cole—they’re doing amazing work for MND Association: socialsync.app/fundraiser/cr-…
And the winner is….!!!! @StandAgainstMND #JGAwards
Charity places available for Manchester Marathon 2025 📢 Be part of #TeamMND and conquer 26.2 miles in one of the UK's flattest and fastest major marathons! Whether you're chasing a personal best or soaking up the atmosphere, this race is unforgettable.
Hope you can join us at this Notts MNDA event: facebook.com/share/pm12hT7f…
Man embarks on B-road coast-to-coast challenge for MND charity - BBC News bbc.co.uk/news/uk-englan…
Rob Burrow 💔😢 rest in peace xx
It is with deep sadness that the club can confirm that former player Rob Burrow CBE has passed away, aged 41. More here therhinos.co.uk/article/20426/…
#Leeds Marathon done - 5hrs 13 mins in support of @mndassoc @mndcampaigns @MNDNotts Some pretty brutal hills and warmer than most of my training runs but a great atmosphere from the spectators. Thanks to everyone who sponsored me and to all those who shared my posts.
Shoutout to the incredible #TeamMND who have dived into #Swim6kinMay! Your dedication has already raised a staggering £100k for the MND community. Let's keep making waves 🏊
#TeamMND know how important Luke has been in raising awareness for the Association and the MND community. Now, he is giving you the chance to win a signed shirt to raise vital funds. We 💙 @LukeTheNuke180!
Looking forward to night 15 @OfficialPDC Premier League in Leeds 🎯 For a chance to win tonight’s Pdc Premier League Leeds match worn signed shirt 🎯 Click on the link below donate as little as £1 to be in the draw ☢️ @mndassoc justgiving.com/page/lukelittl…
Just one of many amazing memories for Sam yesterday #BusinessFinished
Massive cheers for @StandAgainstMND founder, Sam Perkins, for completing @LondonMarathon 🧡
Big congrats 🙌 @LukeTheNuke180 and thanks hugely again for supporting us @mndassoc too 🏆💙🎯
GETTTT INNNNNNNNN🏆🎯
Introducing @StandAgainstMND and @mndresearch PhD student, @Hannah_Bailey00! The project Hannah is working on investigates if blocking a naturally occurring biomolecule will help to protect motor neurones. You can read the full story below 🧬
MND Association @mndassoc
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Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
Jenn Scribbins @jennmndassoc
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Greg Broadhurst @GregBroadhurst
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MNDA Northern Ireland @MNDA_NI
2K Followers 2K Following 💙Raising awareness 🧡Supporting people with MND in NI ➡️FB: https://t.co/L8xEK0v5zV ➡️JustGiving:https://t.co/wX1lQPM1Qf #mndani Reg Charity No. 294354
Katy Styles @WillowKaty
3K Followers 4K Following #UnpaidCarer to @markrstyles who lives with Kennedy's Disease #MND Created @WeAreCarers Campaign to #ValueCarers
MND Education @mndeducation
3K Followers 910 Following Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
Sandra SmithMND @SandraSmithmnd
3K Followers 4K Following Husband died MND/FTD. Public Adviser MND Dementia Palliative End of Life careHealth Equity ARCNWC was Sandra True Spontaneous coronary heart dissection survivor
MNDA Leics & Rutland @MNDA_Leics
1K Followers 677 Following Leicestershire & Rutland branch of the Motor Neurone Disease Association.
Alex Ward MND Angel �... @alexwardfund
530 Followers 886 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Jordan @AnnmarieMND
544 Followers 801 Following Fighting to find a cure for Motor Nerones Disease! https://t.co/aOnxCOQQXK
MNDA - Hertfordshire ... @MndaHerts
309 Followers 466 Following We are the Hertfordshire branch of the MND Association. Supporting those living with and affected by MND.
Sam Perkins @TriSam81
566 Followers 626 Following Diagnosed with #MND in 2019. The only thing it makes stronger is your mind. Founder of @standagainstMND #NFFC Fan, #Triathlete, #Ironman
MNDA Cheshire @MNDa_Cheshire
307 Followers 264 Following Supporting people affected by Motor Neuron Disease across Cheshire. 🧡 Community. Awareness. Hope.
LifeArc @lifearc1
8K Followers 3K Following Self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.
Conor Murphy @conor_murphy14
545 Followers 2K Following 🇪🇺Globalist: Pro Free Trade+Migration+Ethics: Anti Corruption+Waste⛽️ 30yrs Oil (ex Shell XoM BH Sinopec)🧬Med Student🏛x MEP/GE candidate🏉Rugby player LIRFC
Bear, Shadow, & Teds ... @Nicola_Darke
659 Followers 3K Following Lover of Cornwall, Animals & TRF #DisabilityAwareness Sufferer of #Fibromyalgia #Me #PTSD #Sciatica #NeuromuscularNeuropathyDisorder #HypoesthesiaParesthesia
Nigel Brasier @TheBraveBrasier
200 Followers 417 Following Get up, dress up and show up. WDBS Snooker Player. MND Fundraiser. NHS Volunteer
ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
MND York Group @yorkmndgroup
28 Followers 96 Following Supporting people in York living with MND Just Giving Page: https://t.co/1dUBUrp2Kz
True Bingham @TrueBingham
697 Followers 1K Following Information channel for Bingham Nottinghamshire please tweet any useful info at any time
MidNottsNeuro @MidNottsNeuro
7 Followers 107 Following Mid Notts CNS and Bassetlaw CNS and Stroke Service. Follow us for updates within our services. https://t.co/3blX1FVaYw
MND Research @mndresearch
667 Followers 185 Following Every day we drive research into motor neurone disease — from understanding causes to finding treatments. Because every day matters.
Me v MND @Me_v_MND
39 Followers 229 Following The #MND #ALS related account of @edcooke. Living with MND since 2023. Trustee of @mndassoc. Views own.
Emma Louise Webb. THT @EmmaLouiseWebb3
4K Followers 5K Following Social and TV Commentator, Health Awareness expertise,, , Fundraising Ambassador for @THTorgUK , Views Are My Own.
Lindsey Gleadhill @Linzieloulou
85 Followers 547 Following 💕Beauty at heart - with Lindsey 💕 on Facebook
kay @katieengles
67 Followers 619 Following
MNDA Yorkshire Dales @MNDA_Dales
39 Followers 139 Following The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area. Find out more HERE 👉 https://t.co/7n5OPdKWrD
Marie @mosey538
725 Followers 6K Following Pan oh, not Bio! Nobody. Moseying. She/her/they/them. https://t.co/kMiP2HtuTD
Charity Collector @CharityCollectr
171 Followers 929 Following
Peter Whitehead @peter_whit18612
45 Followers 173 Following Recently Diagnosed with MND/ALS, Father of 3, Estate Agent of 40 Years, love being on the sea power boating & huge Leicester City fan.
Challenging MND @challengingmnd
488 Followers 461 Following Our objective is to provide assistance and financial support to those diagnosed with MND to complete longlasting and memorable challenges
Marsha Begley @MarshaSwMum
663 Followers 3K Following A proud social worker, leading within the Disability Division @ #teamSHSCT. All views my own #Yes2SocialWork #ChooseSocialWork #SocialWorkNI #SocialCareMatters
My MND Mates @MyMNDMates
35 Followers 94 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
Page Kirk @PageKirkLLP
1K Followers 3K Following Chartered accountants and tax advisers that go beyond the numbers. Global Reach | Local Service.
Prof.Dr İdrisoglu @HAidrisoglu
239 Followers 2K Following
tracey hadfield @hadfield66
5 Followers 23 Following
MND AWARENESS FC @MND_AWARENESSC
77 Followers 280 Following we are a charity football team based in Leeds West Yorkshire representing the MND ASSOCIATION we will be playing football matches in aid other MND charities
Jade @Jadee_Amb3r
313 Followers 3K Following
quackers @fanlightfranny
478 Followers 1K Following It's the climate. Living alone with Motor Neurone Disease is making life interesting
Duncan Coote @cootey74
92 Followers 118 Following Leicester Tigers Fan Play for Newark Rugby Club Love to gym and spin
Shuseson @shuseson13439
6 Followers 406 Following Gods determine what you're going to be。Contact me Telegram number:
Sam & The Bucket List @SJHH32
506 Followers 1K Following 💪 MND (limb onset) diagnosed 5 March 2022 🪣 Sam's Bucket list: 73/100 complete. 🗣️ Wheelchair Life, Accessibility, Independence, MND/ALS 📍 Kent
Toshem @Toshem163041
36 Followers 1K Following
Jess Lee @JessicaLee_RD
13 Followers 89 Following Director of Research @MNDoddie5. All views are my own.
Artemis Tree Service @ArtemisTrees
227 Followers 640 Following An industry leader for tree work in London and around the M25, Artemis provide a service based on quality, professionalism and value for money.
Ben Hall @drbenpchall
72 Followers 90 Following Postdoctoral Researcher in Neuroscience at the University of Sheffield. 34th #alsmndsymp Communications Ambassador. Views are my own.
SiHallas @SimonHallas2
179 Followers 2K Following Fundraising for MND. walking 100km in 1 day to raise money and awareness. Hull FC fanatic and Views are my own.
C.S. Cavanagh @CSCavanagh
62 Followers 76 Following
Remi Ediers @RemiEdiers22546
3 Followers 61 Following
Evan Campa @EvanCampa
3K Followers 1K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
ForestTiliDie @ForestTill1Die
42K Followers 25K Following Independent Forest App & Website 📲🔴 | 🔔 Set notifications | Follow for daily #NFFC news, updates, opinions & photos | Enquiries 👉 [email protected]
Better Outcomes in MN... @MNDoutcomes
33 Followers 41 Following NIHR funded research led by @profcjmcdermott. Contact us at: [email protected] Tweets from the research team. #MND #ALS
Pat Dolan @Team_Thriving
845 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Mind Over MND. @mindovermnd
114 Followers 154 Following
Alan Perkins @aaaperk6751
6 Followers 46 Following
All is Well: Lessons @AllsWell333
477 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
candice russell @candice275
74 Followers 316 Following
christine 💙 @christi91089661
242 Followers 951 Following Mum and Nana, fan of MUFC since I was old enough to remember, following Salford FC
Ventilation Inpatient... @AintreeVIC
77 Followers 235 Following Welcome to Aintree’s Ventilation Unit specialised in NIV and tracheostomy care.
MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Rob Burrow CBE @Rob7Burrow
183K Followers 2K Following Legacy account of Rob Burrow CBE. Posts by the Burrow family and in support of the MND community.
Darby Rimmer MND Foun... @DarbyRimmerMND
10K Followers 122 Following Email: [email protected] Website: https://t.co/k7QNaUrRlJ Instagram: darbyrimmermnd #AttackMND
MND Association VIP &... @mndVIPteam
5K Followers 2K Following Every day we work with MND Association patrons and ambassadors to raise awareness and support. Because every day matters.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
MND Campaigns @mndcampaigns
8K Followers 2K Following Every day we campaign for the change that people with motor neurone disease urgently need. Because with MND, every day matters. @mndassoc
Jenn Scribbins @jennmndassoc
864 Followers 1K Following PhD, Fundraiser for @mndassoc. This page is for sharing information & not to be relied upon for communication. Views my own.
Greg Broadhurst @GregBroadhurst
2K Followers 981 Following Footy daft & @FCUnitedMcr Co-Owner. Volunteer / Campaigner MND Association @MNDassoc. Volunteer - @MNDManchester. F/Time Job - Insurance Broker. History Nerd
BBC Breakfast @BBCBreakfast
612K Followers 492 Following UK's most watched morning programme. Join 5 million viewers waking up every day with the BAFTA & RTS winning show from 6am on BBC One ⏰ #BBCBreakfast
MNDA Northern Ireland @MNDA_NI
2K Followers 2K Following 💙Raising awareness 🧡Supporting people with MND in NI ➡️FB: https://t.co/L8xEK0v5zV ➡️JustGiving:https://t.co/wX1lQPM1Qf #mndani Reg Charity No. 294354
MND Association - Man... @MNDManchester
3K Followers 464 Following Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.
MND Education @mndeducation
3K Followers 910 Following Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
Sandra SmithMND @SandraSmithmnd
3K Followers 4K Following Husband died MND/FTD. Public Adviser MND Dementia Palliative End of Life careHealth Equity ARCNWC was Sandra True Spontaneous coronary heart dissection survivor
MNDA Leics & Rutland @MNDA_Leics
1K Followers 677 Following Leicestershire & Rutland branch of the Motor Neurone Disease Association.
Stacey kirkpatrick MC... @Staceyk51
1K Followers 579 Following Charity fundraiser passionate about positive donor journey’s 🫶🏼 Mountain goat 🐐 Travel Addict 🌎 Way too much energy for one person✨
Sam Perkins @TriSam81
566 Followers 626 Following Diagnosed with #MND in 2019. The only thing it makes stronger is your mind. Founder of @standagainstMND #NFFC Fan, #Triathlete, #Ironman
Andrew Rule @cllrandrewrule
535 Followers 579 Following Independent councillor for Clifton West covering #Wilford, #Silverdale & #Clifton. Casework best directed to [email protected].
Liz Liversidge @LiversidgeLiz
2K Followers 4K Following Mother, wife, Social Worker. Love life. Married to @LiversidgeJason, the most inspirational person I know, fighting #MND & #FabryDisease #DIYSOS family.
BBC Nottingham @BBCNottingham
89K Followers 442 Following Celebrating people and stories from the amazing place we call home. 🎧 Listen to BBC Radio Nottingham on @BBCSounds ⚽️ Follow @BBCRNS 👇 Tap for more stories
ian muir @ianmuir65555681
115 Followers 154 Following
Ian Flatt @IanFlattTDM
451 Followers 256 Following “We all have our mountains to climb, it’s just so much easier when we do it together” Fighting MND my way. #WhatsYourMountain #nottodaymnd
Selina Shaw @SelinaLShaw
212 Followers 738 Following Clinical Psychologist ✨️ West Yorkshire Views are my own.
Yorkshire Choice Awar... @yorkshirechoice
5K Followers 5K Following Our 10th Celebration of Yorkshire’s Heroes, Inspiring Businesses and Charitable Organisations - 2026 Awards Ceremony in support of @CandlelightersT
Leeds Hospitals Chari... @LDShospcharity
5K Followers 1K Following Leeds Hospitals Charity supports @leedshospitals to make a real difference for patients, families and staff.
Esther Fifield @ MND @EstherMNDAssoc
1K Followers 1K Following #MND Association fundraiser & passionate about making a difference; I can help equip you to create more awareness & funds & share events you may like to join...
The MND Tee @themndtee
123 Followers 47 Following The tee in aid of The Motor Neurone Disease Association ~ 100% of profits go to supporting families affected by MND. Together we can fight back. #themndtee
The Good Racing Co @thegoodracingco
8K Followers 1K Following When we race, everybody wins. Supporting charities, supporting racing
Make MND Extinct @MakeMnd
125 Followers 85 Following Please help me to raise awareness and funds for the MNDA by purchasing a T Shirt for your little ones ❤️ #MND
StampOutMND @StampOutMnd
313 Followers 1K Following Solo Charity Fundraiser For The Motor Neurone Disease Association since 2015, Check out FB for more detailed posts.
Andy Thompson @AndyThompsonIHL
22 Followers 116 Following General Counsel, Boots UK & ROI, dad/husband, Forest fan (long suffering), novice runner (newly suffering), guitar, MND Association. Views my own
Martyn Clarke @clarkemartyn1
988 Followers 931 Following 3 x IM 140.6 Valencia Marathon 7/12/25 🇪🇸 ⏭️ Alpe d'Huez Triathlon 🇫🇷 5/8/26
Sally Hughes @SallyHughesMNDA
97 Followers 153 Following Proud Assistant Director @MNDassoc. Helping people, places & systems improve care. Weekend adventurer in pursuit of music, nature & slow swims. Tweets my own
Rachel @rachel_MND
293 Followers 639 Following East Midlands Community Support Coordinator for @mndassoc interested in Health Psychology, Forest Bathing, carers support & volunteering
Jason liversidge @LiversidgeJason
1K Followers 2K Following Terminally ill family guy with MND and fabry's, fighting the odds to make memories and raise awareness, doing crazy challenges despite being wheelchair bound.
EyeControl @EyeControl
670 Followers 1K Following The EyeControl is the first #ICU communication and monitoring solution for ventilated patients who cannot speak. #InspiringCommunication
MND Derbyshire @mndderbyshire
349 Followers 122 Following The account for the Derbyshire Branch of the Motor Neurone Disease Association. #MND
sharon king @sharonkingMND
154 Followers 59 Following I'm the Regional Fundraiser for the Motor Neurone Disease Association in the East Midlands. All views on this account are my own.
Nottinghamshire Hospi... @nottshospice
4K Followers 2K Following Nottinghamshire Hospice is a charity providing end of life care and emotional support for adults in Nottingham and Nottinghamshire.
MND Register @MNDRegister
402 Followers 338 Following MND Register for England, Wales & Northern Ireland #MND #ALS
MND Australia @mndaustralia
3K Followers 424 Following Care, advocacy and research in support of those living with motor neurone disease (MND).
Stand Against MND @StandAgainstMND
842 Followers 177 Following Raising funds for research into a cure for motor neurone disease (MND) and local hospice care for those affected by MND (registered CIO no:1187436).
The Robin Hood Fund @RHFNottingham
568 Followers 229 Following The Robin Hood Fund is for those in our city that need our help right now. Please support if you can
Doddie Weir OBE @DoddieWeir5
50K Followers 634 Following Ex-Scotland & Lions player; hubby, dad, author, speaker, fund raiser, prolific tartan wearer with MND. For books https://t.co/2yEBHITQzX…?
Keta's Journey @Ketas_Journey
189 Followers 135 Following The Street family climbing 47 peaks in 5 days for Motor Neurone Disease Association (@mndassoc). Please donate: https://t.co/z1D9OkZnNz #KetasJourney
QMC Neurosciences @NUHNeuro
536 Followers 173 Following QMC is home to one of the busiest regional Neurosurgical departments in the country. The Neurology Service has a strong research portfolio & international rep
Adult Speech and Lang... @NottsHCAdultSLT
2K Followers 544 Following 🗣Adult Speech & Language Therapy service @NottsHealthcare Providing SLT services (communication & swallowing) to the Nottinghamshire County community.
MND Volunteering @mndvolunteering
678 Followers 251 Following We're the volunteering team for @mndassoc. We work closely with our volunteers and together we are #StrongAgainstMND Email: [email protected]
Lifton SPS for MNDA @BikersLifton
405 Followers 2K Following "hang on lads; I've got a great idea" we are s group of men who are old enough yo know better than doing these stupid things, but it's all in aid of the MNDA.
Darren Carr @Darren_MND
219 Followers 59 Following I am the Head of Facilities for the MND Association. We do amazing work for those affected by this terrible disease.
Philip Brindle @PhilipBrindle
269 Followers 309 Following Diagnosed with motor neurone disease in 2015 and user of the Head Up Collar. Member of the Sheffield Motor Neurone Disorders Research Advisory Group.
Kirsty Masters-Harris @KirstM83
411 Followers 649 Following
Stephanie Mills @StephM078
136 Followers 198 Following Love life. Work for the NHS in H&S❤️All views my own...Fundraiser for MND lost my Dad and Grandad to this horrible disease, one day a cure.🤞..#MND













