Norris Lab @NorrisLab
Research Lab at the Medical University of South Carolina #HeartValveDisease #MitralValveProlapse #EhlersDanlosSyndrome #Fibrosis thenorrislab.com Charleston, SC Joined October 2019-
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Did you know that our EDS research is largely funded by private donors, just like yourself? You can be a part of the solution this #GivingTuesday by supporting our EDS research and advocacy efforts at thenorrislab.com/donate.
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If you're a college or graduate student with EDS or HSD, this is an opportunity to accelerate discoveries and be a part of the change! 🧬🔬 For more information, eligibility requirements, and to apply, head to thenorrislab.com/patient-scient…
Join us for an 8-week summer research internship in the Norris Lab at the Medical University of South Carolina, where you'll work on research projects to further our understanding of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD).
📣 Exciting news! The Gensemer hEDS Intern Program 2024 is now accepting applications! 🌟 @MUSChealth @ResearchMUSC @musc_cgs #hEDSResearch #EhlersDanlosSyndrome #ChangingWhatsPossible
Norris Lab retweeted
Drawn to the Postbac Program to learn about a genetic condition that influenced her dance career, Victoria Daylor '23PBPM is now headed to @NorrisLab as a Research Specialist before pursuing medical school. #GreatGradsOfGS #OwlTogether2023 #Columbia2023 bit.ly/3Lr49Lb
The Norris Lab is looking to hire a program coordinator to assist with EDS-related research projects in the lab! Please share with anyone who may be interested: musc.wd1.myworkdayjobs.com/MUSC/job/Charl…
HIP 2022 Alum....Where are they now? HIP 2022 alumnus, Christina Hastings, has recently accepted an internship with Teva Pharmaceuticals. Congratulations, Christina! We're so proud of everything you've accomplished outside of the Norris lab! #norrislab #musc #internship #HIP
physician in the United States. Way to go, Leon and Rebecca! We're so proud of your accomplishments! You're one step closer to achieving your goals! #norrislab #congratulations #USMLE #musc #step1 #step2 #medicine #physicians
Congratulations to Norris Lab members Leon Guo and Rebecca Byrd! Leon and Rebecca took part of the United States Medical Licensing Examination (USMLE). Rebecca passed step 1 and Leon passed step 2! The USMLE is a 3-step exam that is required to become a licensed practicing
Norris Lab retweeted
🔥hot off the press: a deep dive into MVP - associated ventricular fibrosis. Another great collaboration between Leipzig Heart Center, MUSC @NorrisLab and MGH @MGHHeartHealth @MMarinCuartas @cardiologystar doi.org/10.3389/fcvm.2…
The Norris Lab is looking to hire a program coordinator to assist with EDS-related research projects in the lab! Please share with anyone who may be interested: musc.wd1.myworkdayjobs.com/MUSC/job/Charl… #research #musc #norrislab #eds #heds
HIP where are they now? HIP 2022 alumnus, Christina Hastings, presented a poster at the Southeast Regional Clinical & Translational Science Conference in Georgia on her Ehlers-Danlos Syndrome research from the Summer 2022 HIP program. Way to go, Christina!
This is your last chance to apply for the 2023 Gensemer Hypermobile Intern Program! Applications close on Tuesday, February 28th. Apply here: redcap.musc.edu/surveys/?s=7AN… #research #norrislab #heds #eds #musc #science #intern #opportunity
Yesterday was International Day of Women in Science! Happy International Day of Women in Science to the Norris Lab's own Dr. Gensemer, Dr. Hohn, Taylor, Erika, and Julianna!
Please register beforehand at: igfn.us/form/vJAkHg #eds #heds #chiari #syringomyelia #bobbyjonescsf #unite4answers #musc #support
Don't forget...The Bobby Jones Chiari and Syringomyelia Foundation Charleston Chapter will be having their quarterly meeting on February 16th in BE110. 5:00-patient to patient discussion group, 6:30- expert lecture with Dr. Alan Snyder.
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Candace D. @DiaryofaSickGrl
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Sabeeha Malek, PhD @SabeehaMalek
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Professor Lara Bloom @LaraBloom
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Natasha Lipman @natashalipman
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Jennifer Brea🦒 @jenbrea
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Zahra Khan (she/her) ... @hellozeik
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Sarah Cohen Solomon, ... @TheBendyPedMD
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Ehlers-Danlos Support... @ehlersdanlosuk
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Erin C. Sanders, MSN,... @ErinSandersNP
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Alex @futurelifefirst
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Kim @Web4Door
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J.C.M.G. @JCMG27565135
238 Followers 23 Following CREATOR FOR ART. Creador audiovisual. 🚨https://t.co/wKLlwzxU36🚨 https://t.co/31tNKNOF84🚨https://t.co/NoMMekJzBZ
Brian Fog @useless_priest
9K Followers 5K Following LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
undiagnosed.com @Undiagnosed_com
101 Followers 525 Following WEBSITE COMING SOON--- Connecting Patients with Undiagnosed Disorders--- Community | Resource Guide | Specialists Network | Research
J~Me ✨🌈💛🫶�... @JMeDynamically
553 Followers 763 Following LMT & RM, SBO, 💍 #JTDayOne 🌟NSYNC, #GOBIRDS 🦅 #GoPhils ⚾️ EDS Warrior 🦓 POTS ♥️
Nauan Fara @NauanFara
0 Followers 45 Following
Daisy Fiona @DaisyFionaai
148 Followers 77 Following A woman who loves life and cycling, prefers not to elaborate on herself if you like it, that's all that matters
Red ♿️ @RedIsND
1K Followers 848 Following #AuDHD #OCD with physical disabilities 👩🦼 - 🏳️🌈 - here to connect with fellow minded people #wearAMask #CovidIsNotOver #FreePalestine - against AI
Fran Carrillo-Salinas... @FranCarrilloPhD
904 Followers 1K Following Research scientist 2🧪🧬 @MIT. Sci illustrator. #WomenInPathology. Before @TuftsMedSchool an @InstitutoCajal @CSIC.🇪🇦#FirstGen Tweets are my own
Clearsunset811 @clearsunset811
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Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Captain Science @_captainscience
5K Followers 2K Following Ex cell biologist. Evidence matter, facts matter. #actuallyautistic. @captainscience.bsky.social Don't police my language. Childless and catless.
Dr. Michelle Nichols @MNicholsPhDRN
144 Followers 490 Following Global health scientist specializing in NCDs, Ehlers Danlos Syndromes, community engagement, and ethics. Past President MMIRA. Opinions are my own.
Aimee Reid @aimeereidbooks
2K Followers 5K Following Writer. Educator. Mom. Newest books: Animal Snuggles (Sourcebooks), A World of Love (Penguin Random House)
Marco @Gmwetz
5K Followers 2K Following Long COVID (3.5y) | Neurological symptoms Trying TPS treatment (n=1 experiment) If you’d like to support my treatment: ⬇️
Erica Hayes @EricaMHayes
3 Followers 59 Following
Colleen @SrtaHonk
60 Followers 482 Following
Behning Margaret @BehningMar10074
1 Followers 84 Following
DFW EDS & HSD Support... @dfwedsgroup
10 Followers 70 Following Support group for those with Ehlers-Danlos Syndrome (EDS) or Hypermobile Spectrum Disorder (HSD) in DFW, TX and surrounding areas.
Michelle @MichLay88
164 Followers 2K Following Numbers nerd, political agnostic. Free speech is even for the stupid.
Mike Wzorek @MikeWzo
71 Followers 375 Following
crystaphaze @crystaphaze
149 Followers 434 Following new account because my old one was hacked - EDS Advocate, Mastiff Mom, Influencer, Norwex Consultant, Zionist
katie @LadyInClogs
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Juliana Conz 🇧🇷... @JulianaConz
230 Followers 2K Following Volunteer of all trades. Deep into nonprofits, environment and social change. HR, VAW & women in politics activist. Selftaught geek. Movies, tv and sci-fi buff.
I can't even @slodza
165 Followers 4K Following Angry. Can’t forgive FB, Camb Analytica, demagoguery, right wing framing of news, etc. Retweets do not imply endorsement, sometimes I just hit wrong button.
Elle @Chronicalyelle
183 Followers 450 Following sharing my inner thoughts | hate it here but can’t quite kick it
Navigate Chronic Pain @NavigateChronic
54 Followers 437 Following I built this support companion for my daughter who has EDS, Pots and Chronic Pain. It’s designed to be there 24/7 especially during https://t.co/vGH94b5a5B flare ups. Try it Free
Amr @MKhlyl62711
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Liberty24 @MochaPup448
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Scatessmee @scatessmee50883
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Pau ඞ @canelabratsche
69 Followers 251 Following Violista, professor, pare de conills, lector, socialista (ML), gòtic... Visquent amb #EDS & co i fent voluntariat 🏳️🌈♿🦓
Sharseau @Sharseau_DdixR
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Jenny Niedenfuehr, MP... @Hipspelvis
139 Followers 499 Following -Current PhD Candidate (3rd year)- ISSWSH and SMSNA member / Patient Advocacy Committee #paowarrior #endowarrior #ehlersdanlos #POTS
Tankut Atuk @tankutatuk
675 Followers 950 Following Asst Prof at RPI STS | Medical Anthropology/Sociology | Critical Global/Public Health | HIV & Activism | Queer
max @foxcakepop
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rachel @shadowboxer73
2K Followers 7K Following TruthSeeker~TruthSpeaker~FreedomFighter~AntiRacist~HistoryNerd~HipHopJunkie~Abolitionist~proudANTIFAscum~UnapologeticallyAuDHD~IncapableOfFakinTheFunk~
Sometimes salty @beepsandalarms
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American Syringomyeli... @ASAPChiariSyrin
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Ana @Ana940685846043
4 Followers 87 Following
Hypermobility MD: Dr ... @BluesteinLinda
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Jeannie Di Bon @jdibon
11K Followers 1K Following Hypermobility Specialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QjwY | Founder & CEO of The Zebra Club
Alissa Zingman MD MPH... @DocZing
4K Followers 1K Following PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Dysautonomia Intl. @Dysautonomia
26K Followers 353 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Sabeeha Malek, PhD @SabeehaMalek
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Anne Maitland, MD @asktheallergist
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EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Professor Lara Bloom @LaraBloom
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Ehlers-Danlos Support... @ehlersdanlosuk
18K Followers 10K Following *This account is no longer active. See pinned post for how to find EDS UK and access support.*
Amy Proal, PhD @microbeminded2
30K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Houda mesnaoui @MrslncRNA
30 Followers 91 Following 🧬PhD student in @Antonikourtidis lab, where cell junctions meet RNAi machinery📚Studying lncRNA regulation of cell behavior in colorectal cancer cells.
Antonia van Kampen @avankampenMD
238 Followers 408 Following 🫀surgery resident @Leipzig • former research fellow @MGHSurgery • former @AHAScience postdoc fellow
Reader’s Digest @readersdigestUK
18K Followers 221 Following With a heavy heart, we announce that Reader's Digest UK has ceased to publish. Read more information at https://t.co/l92pq4EVvH
Bobby Jones Chiari & ... @bobbyjonescsf
2K Followers 302 Following The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders.
MUSC Department of Ne... @neuro_MUSC
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GugliettaLab @GugliettaLab
214 Followers 364 Following We are a mucosal immunology lab with expertise in colon cancer, inflammatory bowel disease, microbiome and neuroinflammation.
ASHG @GeneticsSociety
52K Followers 307 Following The American Society of Human Genetics (ASHG) is the world's largest professional membership organization for human genetics & genomics specialists.
Genoox @GenooxTeam
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Joe Mouawad @mouawadjoe
240 Followers 154 Following MD, PhD @MUSC_COM | PGY-1 General Surgery Resident @MontefioreSurg
Lori L McMahon @LLMcMahonNeuro
516 Followers 406 Following Neurobiology researcher👩🏼🔬and Vice President for Research at the University of Virginia. Views are my own. RTs are not endorsements.
Stephen Duncan @stephenduncansc
88 Followers 127 Following Professor and Chair of Regenerative Medicine and Cell Biology at the Medical University of South Carolina, Charleston.
American Society for ... @ASCBiology
35K Followers 1K Following Inclusive, international community of life scientists. Home to @MBoCjournal @CBELifescied.
Amanda Daulagala @AmandaDaulagala
62 Followers 182 Following
MUSC Hollings Cancer ... @muschollings
6K Followers 1K Following MUSC Hollings Cancer Center is the only National Cancer Institute designated cancer center in South Carolina.
LOWVELO @lowvelo
160 Followers 109 Following Established in Charleston, South Carolina, LOWVELO is a grassroots bike ride that raises money for innovative and life-saving cancer research.
Munera lab @Muneralab
1K Followers 576 Following Assistant professor, Medical University of South Carolina. Studying human hindgut development and disease using human pluripotent stem cell derived organoids.
Mitral Valve Prolapse... @MVPAwareness
30 Followers 59 Following Raising awareness about Mitral Valve Prolapse. ℹ️ https://t.co/yLpgwKzYBw Reddit: https://t.co/zank7dIJvj
MUSC Grad Studies @musc_cgs
366 Followers 161 Following Medical University of South Carolina College of Graduate Studies' official page
MUSC Research @ResearchMUSC
760 Followers 367 Following MUSC is the premier biomedical research institution in South Carolina. We're committed to leading health innovation and changing what's possible in health care.
Jennie Lin 👩🏻�... @jenniejlin
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Dianna Nord, PhD @dianna_nord
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MUSC Alumni @MUSC_Alumni
750 Followers 204 Following The official place for Medical University of South Carolina alumni. Engaging, connecting, and celebrating MUSC's alumni, students, and friends.
MUSC Foundation @MUSCFoundation
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MUSC Department of Su... @MUSCSurgery
2K Followers 447 Following MUSC Department of Surgery provides the finest in patient care while seeking innovative solutions to the many diseases treated in the discipline of surgery.
MUSC Children's Healt... @MUSCkids
10K Followers 634 Following Providing expert care in over 27 specialties. Our integrated system includes an advanced pediatric hospital, as well as primary, urgent & specialty locations.
Frank Conlon @fconlon
794 Followers 980 Following Professor of Biology & Genetics, Cardiac, #CHD Researcher & Developmental Biologist #UNC, #firstgen Fly Fishing
Julianna Weninger @JuliannaWening2
12 Followers 85 Following Ehlers-Danlos Syndrome warrior. Brain Surgery survivor. Wife, Daughter, Sister, Friend. Fluent in sarcasm.
Kyle Beck @KyleBec07433377
4 Followers 47 Following
Tybeck00 @Tybeck001
8 Followers 5 Following
Jordan Hartig, PhD @hartig_jordan
43 Followers 90 Following UNC Asheville and MUSC alumnus #womeninstem views are my own
Christian Jones @SciChristian
47 Followers 84 Following Science Writer at the University of Chicago | Science Policy | Disability Advocacy *All opinions are my own*
Roman @rofenner
168 Followers 89 Following Davidson College ‘22 | MSTP student @ the Medical University of South Carolina
TheMarfanFoundation @MarfanFdn
5K Followers 2K Following The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
EDS awareness page @Ehlersdanlos
6K Followers 479 Following Support page for Ehlers-danlos Syndrome sufferers.
EhlersDanlos Support @Ehlers__Danlos
3K Followers 149 Following Ehlers Danlos Support Network. Relatable #EDS moments, sympathy, and commiseration. Also join our Facebook group!
EDS Project @project_eds
204 Followers 222 Following Research Project at @UGlosPsych (run by @DrStephensLewis a fellow 🦓 & @elainewalklet )
Jade Barclay 😷🌈... @JadeBarclay
4K Followers 5K Following Digital Health. Health Data Equity. Informatics, DataSciComm. Pain hEDS+Multimorbidity. WiDS DisabledInSTEM RStats [email protected]
hypermobility.org @HMSACharity
11K Followers 7K Following Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
Jon Epstein Lab @JonEpsteinLab
1K Followers 352 Following News from Jonathan A. Epstein's lab at the University of Pennsylvania @PennMedicine. Tweets by lab members. https://t.co/3F9KxDofVi
M.C. Scheper @Doctor_Stretch
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