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SC RED is more than an organization — it’s a bridge between patients, people, and providers. These testimonies reflect why this work matters and how creating space for honest conversations can change care, outcomes, and lives.
At SC RED, we’re addressing the challenges individuals with sickle cell disease face in reproductive and maternal health care. Through advocacy, research, and lived experiences, we empower individuals with the knowledge and support they need for their health and future. 🌟
Still processing the beauty of last night’s fireside chat. So grateful for every person who showed up, shared their truth, and created space for real, raw, and honest conversations. These stories matter. You matter. Thank you for trusting this space 🤍✨ #sicklecellawareness
Here at SC RED, we never get tired of talking about sickle cell and reproductive health — because every conversation brings us closer to awareness, access, and change. ❤️🩹 #SCRED #SickleCellAwareness #ReproductiveHealthMatters
💭 Living with sickle cell (or supporting someone who does) comes with so many ups and downs—physically, mentally, and emotionally. Your mental health matters just as much as your physical health. 💜 Drop the heart that matches how you’re feeling today. #SickleCell #MentalHealth
✨ “Having sickle cell doesn’t mean you can’t have kids. 💕 It just means planning, support, and the right care are key. Talk with your hematologist + OB team early, know the risks, and make a plan for a healthy pregnancy. 🍼❤️ #SickleCellStrong #ReproductiveHealth #YouCan
💔 Did you know sickle cell can impact fertility in both men and women? From low testosterone and priapism in men, to diminished ovarian reserve and chemotherapy effects in women — warriors face unique challenges when it comes to reproductive health. 🌹 It’s more than physical.
Let’s raise our voices, spread awareness, and uplift our community. Together, we are stronger. 💪🏽❤️ #SickleCell #Awareness #SCRED
🚨Clinical Trial Update🚨 We remain committed to advocating for research that centers the needs, perspectives, and voices of the sickle cell community—and we’re deeply grateful to every participant whose involvement strengthens the future of SCD treatments. ❤️ #SickleCell
Dinner, discussions, and reproductive health across every stage of life 🌸✨ Join us at 6:30 PM! #SCRED #SickleCell #HealthAcrossTheLifespan • • • • • • • Share & repost please 🥰🙏🏽
Now who said that?! 👀🤭 With that being said, You don’t want to miss our ✨CRITICAL CONVERSATIONS DINNER✨ 📆 SEPTEMBER 6th, 2025 📍 The Arena Stage in Washington D.C ⏰ 6pm Get your tickets now, link in our bio 🎟️ #sicklecellawareness #scred #reproductivejustice
🩸✨ DINNER WITH PURPOSE ✨🩸 We’re gathering the community for a night of powerful conversation, good food, and real solutions. Let’s talk about Maternal Mortality & Morbidity in the Sickle Cell Community. 📍 DC | 🗓️ Sept 6 | 🕕 6–10PM 🎟️ Limited seats —register now! Link in bio
Today is #WorldSickleCellDay ❤️🩹 Sickle cell is more than pain. It’s a fight for our lives, our futures, and our voices. I live it. I raise awareness for it. I’m surviving it. 🎗️Support sickle cell warriors. 🎗️Learn the facts. 🎗️Speak up for health equity. #SickleCellAwareness
Please be mindful of your responses if someone brings up infertility. It can be a very difficult topic for some🩵 If you are living with sickle cell and dealing with infertility, Sickle Red is here for you. We have many resources for you. Visit our website sicklecellred.org
Sickle Cell Reproductive Health Education Directive is having another Critical Conversation:Contraception in Sickle Cell Disease - More Than Just Depo! Webinar Series. @SickleRED20 Register here, streamyard.com/watch/hKhXBqVD… Mark your Calendars, LIVE on Streamyard, October 16th
Good morning good people! Today we wanted to send a bit of motivation your way. This too shall pass. #thistooshallpass #scred #sicklecellred
Our Critical Conversations Webinar Series has been incredibly informative. Register to join the next one where we will hear from the man behind the science of gene therapy, Dr. John Tisdale. Register here: eventleaf.com/e/gene
Join us this evening It's not too late to register: eventleaf.com/e/ethics?fbcli…
Hey @nbcsnl We have a gene and cell therapy education day at our conference in April 🩷 #SickleCellAwareness
Julie Kanter @jkw4444
3K Followers 2K Following I specialize in sickle cell disease care for all ages with the heart of a pediatric hematologist. My tweets are my opinions to be shared and to support others
SickleQueenT @sickle_t
433 Followers 202 Following here for #TeamSickleCell, #Warrior, #Advocate, CEO, Reproductive health, stem cell transplant rejection survivor
Alexandra Power-Hays,... @DrPowerHays
3K Followers 2K Following Same username on Blue Sky. Find me there! Sickle Cell Doc & hematologist fighting for our pts, locally and globally 🌍
Seethal Jacob, MD, MS @seethal_jacobmd
2K Followers 2K Following #SickleCell Provider/Advocate, #PHOdoc, #HealthServicesResearch Let’s talk #ImplementationSci and #Telehealth. Tweets are mine.
Memej99-SickleCellLif... @Memej99
2K Followers 2K Following SickleCell/CP Advocate | President @ueosicklecell| Community Leadership Council @national_pain|#UEOSickleCell #SickleCellLifeOfMemej
Sick Cells @SickCells
3K Followers 629 Following Sick Cells’ mission is to elevate the voices of the SCD community and our stories of resilience.
Payal Desai, MD @PayalDesaiMD
572 Followers 444 Following Hematologist. The views expressed here are my own.
Elle Cole (She/her) @Cleverlychangin
10K Followers 9K Following International best-selling (13X) author Speaker & advocate for #sicklecelldisease Producer & #CleverlyChangingPodcast Host 💌 [email protected]
Joan D. Beckman @jd_beckman
2K Followers 5K Following Heme physician-scientist. Grew up in ND. McKnight Land Grant + Lois & Richard King Assistant - University of Minnesota. All opinions are my own.
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
National Alliance of ... @nascc_org
422 Followers 135 Following Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.
Macy Early Gatti @macy_early
203 Followers 509 Following Internal medicine resident at Penn. Find me thinking about health equity, sickle cell, running, or Kentucky basketball. Core value: compassion = "suffer with"
Stephanie Fischer @RarePOV
7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Valentina Baez Sosa, ... @ValenBaezS
589 Followers 624 Following 🇻🇪 | 🇮🇹 Hematologist-Oncologist @NIH |Director, Office of Translational Science @NHLBI | Runner | Former Gymnast & @SpecialOlympics Coach | #WellnessJourney
Sickle Cell Consortiu... @SCCConsortium
4K Followers 925 Following a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.
Cerretta Washington @CerrettaWashin1
1 Followers 44 Following
BlckGirlWSickleCellPo... @blckgirlwscpod
1 Followers 21 Following 🎙️Hosted By Aiyannah Che - “Everything you either know or don’t know about sickle cell” 📧[email protected]
Natalie Smith @NatalieSmi6395
7 Followers 200 Following
Audrey Smith @AudreySmit63125
37 Followers 277 Following
Empowered Advocacy @EmpoweredAdvo
87 Followers 587 Following
Alexandra Boye-Doe @buerkibd
20 Followers 130 Following
Alexandro José Gradi... @ajgradilla
3K Followers 5K Following He/el. Chicano scholar, critical bioethics, decolonial thought. Retweet≠ endorsement. Personal views only.
Carla Coleman @CarlaCo43976565
24 Followers 103 Following Civic Engagement Director Community Health Consultant Driving Equity Solutions Facilitator
Maggie Hall @maggierosehall
163 Followers 745 Following
J Mark Sloan @Jmarksloan
3K Followers 3K Following Factotum hematologist but esp AL Amyloidosis, gene tx for HbSS, & HTLV associated ATLL. Professor and Heme/onc Program Director @The_BMC. The J is for jenius.
Bruce Richman ☮️�... @BR999
13K Followers 2K Following Founding Exec Director of @PreventionAC Undetectable = Untransmittable (U=U) #UequalsU #HIV+ | health equity | 🏳️🌈 🙋🏻♂️https://t.co/1ugmzyCXdv
SCTPN @SCTPN
872 Followers 507 Following SCTPN is a Brooklyn, NY based NPO with a global reach. With #1ViralVoice we speak for #sicklecelldisease.
David Owoeye @davoshalom
3K Followers 5K Following Citizen of the Kingdom of God. Sickle Cell Warrior & Advocate. Infection Prevention & Control Specialist. AMR Advocate Author. https://t.co/9z1lvAfJYh…
Tackle Sickle Cell Af... @TackleSickle
507 Followers 277 Following We're a registered non-profit, holistically fighting Sickle Cell Disease in rural Africa. Contact us: ☎️:+256 786 241 344 📧:[email protected]
lesley e giles @lesleyegiles1
9 Followers 200 Following
Institute for Gene Th... @gene_therapies
2K Followers 456 Following Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.
The Partnership to Fi... @ThePFID
1K Followers 957 Following PFID is a group of patient, provider, and community orgs, health policy experts & others working to advance awareness & action on #AMR & vaccine confidence.
Harish K. Vasishth @vasishth_h18822
23 Followers 604 Following General Manager at Akums Drugs and Pharmaceuticals Limited CDMO Business | New Buss. Development | In-Out Licensing | Strategic Partnership | Exports - Stro
The Sickle Cell Aware... @SCAFKenya
771 Followers 1K Following Kenya's first nonprofit health NGO dedicated to changing the lives of PLWSCD through provision of HEALTH, AWARENESS & HOPE. Call/Text/WhatsApp: +254(0)726931076
Hemex Health @HemexHealth
436 Followers 578 Following Hemex Health creates affordable, life-changing medical diagnostics that empower the new front lines of healthcare
Genotype Foundation @genotypeF
507 Followers 466 Following We help save lives of people living with SCD. We give hope to them. We also help youths know their genotype through free Screening & teach during seminars.
Sickle Cell Disease A... @SickleCellMI
2K Followers 381 Following Education, genetic counseling, advocacy, follow-up laboratory testing, case management, events, medical referrals, summer camp, and more.
Jason Payne, MD, MSPH @JasonPayneMD
213 Followers 509 Following Pediatric Hematologist @ChildrensATL, Morehouse SOM. @UABPeds Alum, @MUSCkids Alum, @universityofGA Alum. #healthequity and #sicklecell advocate. 🏳️🌈(he/him)
The REAL Dr. Dré @DrDre1914
9K Followers 8K Following Former 2x #TXLege staffer. Current: Policy Analyst, PhD student and sickle cell survivor and advocate.
Deanna Portero @DeannaPortero
901 Followers 2K Following Can we scale access to ultrarare therapies in a rapid, efficient, sustainable & equitable way? VP, Partnerships & Innovation at Orphan Therapeutics Accelerator
GodsFavoredBlessing�... @TercheleJ
352 Followers 743 Following T & A Mom👩👧👦 #GodsChild #Motherbeforeanything
MTD👸🏽 @MariamaTellyDi7
38 Followers 295 Following Nature lover, Researcher, Genomics, bioinformatics, human health particularly genetics disorders 👩🏽🔬🧬🔬. Engaged in entrepreneurship
BloodStream Media @BloodStrmMedia
1K Followers 445 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸
Dr. Bria Carrithers-T... @lifewithdrbria
705 Followers 639 Following PGY-5 via @ASH_Hematology HFFTP @YaleHemOnc |Disciple of Christ| Spelman&Hampton&MCG& UAB Alumna. Views=mine.
Queen Shadiah Nassang... @Queen_Shadiah
214 Followers 780 Following SickleCell Warrior | Global Education & Health advocate CEO @Mal_Chi_Ini | Entrepreneur @emun_tech #Jesus
Lwimba @lwimbaa
84 Followers 31 Following A visual artist and a Sicklecell warrior living for the Glory of God
Bimpe Adesina @drbimpesicklemd
44 Followers 19 Following Adult Hematologist, Sickle Cell Disease Clinical Research, Sickle Cell Bone Disease, @UCDavis. Views are my own.
AdeMD @Elneda77
38 Followers 394 Following
queenofdknight @luche_makkynwan
8 Followers 169 Following Psychology storyteller | Igbo health educator | Cultural wellness advocate Building an indigenous-centered wellness
Salveo Therapeutics @MySickleCare
281 Followers 394 Following MySickleCare Sickle cell disease patient advocacy and education. My Sickle Care android app - https://t.co/kFwFBWStoZ is a comprehensive resource for disease management
Steven Hardy @stevenhardyphd
618 Followers 741 Following Director of Behavioral Health Services in Hem/Onc/BMT at Children's National Hospital. Psychologist & behavioral science advocate. Roll Tide Life. Views my own.
Jill Boyett, Pharm.D.... @DrBoyett
50 Followers 909 Following Medical Science Liaison - Global Rare Diseases at Chiesi
REDRESS Study @redress_study
119 Followers 30 Following A national research study working on a new treatment for sickle cell using stem cell therapy. Based at @KingsCollegeLon & @KingsCollegeNHS.
Laura Hemlock-Schaeff... @LauraMenorah715
253 Followers 584 Following NJG. Year round iced coffee drinker. Mac and cheese enthusiast. Cancer survivor 💚 she/her
Yolande Adjibi @YolandeAdjibi
161 Followers 349 Following French 🇨🇵 || Sicklecell Warrior || Interest in Health issues || Working @VertexPharma | 🐦Tweets are mine
Eric Boodman @EricBoodman
4K Followers 3K Following Journalist @statnews. Trad fiddler. Formerly @PittsburghPG @mtlgazette. Always happy to hear your story ideas! [email protected]
Minnesota Building Fa... @BldgFamilies4MN
45 Followers 297 Following Expanding access to infertility care, IVF, and fertility preservation insurance coverage through education, awareness & advocacy.
Julie Kanter @jkw4444
3K Followers 2K Following I specialize in sickle cell disease care for all ages with the heart of a pediatric hematologist. My tweets are my opinions to be shared and to support others
Shematologist, MD @acweyand
82K Followers 6K Following Peds heme onc, mother, dreamer, pacifist, justice seeker. Clueless Mother Theresa. Retweeted by Wonder Woman #CakeForBreakfast https://t.co/4SLDqCFsMq
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Sickle Cell Consortiu... @SCCConsortium
4K Followers 925 Following a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.
Eric Boodman @EricBoodman
4K Followers 3K Following Journalist @statnews. Trad fiddler. Formerly @PittsburghPG @mtlgazette. Always happy to hear your story ideas! [email protected]
Tammy Murphy @FirstLadyNJ
26K Followers 156 Following Former First Lady of New Jersey. Advocate for maternal and infant health, our planet, and women-owned businesses. Wife of @GovMurphy and mom of four.
Samantha Fortuner @_SamFortuner
78 Followers 181 Following Pediatric RN. Lover of people, flowers, and real paper books.
Brianna Capers @Bcapers1993
96 Followers 584 Following I'm a pretty cool chick! You should get to know me :) #CollegeStudent #BigDreams #BigGoals
Amber M Yates, MD @sicklecelldoc
3K Followers 2K Following #twinmom, #RAWarrior #PHODoc #MedicalAffairs #SickleCell Tweets are not medical advice. she/her
Dabma Sickle Cell Fou... @w_sicklecell
2K Followers 1K Following Official page of Dabma Sickle Cell Foundation SCD based discussions & solutions. @DabmaFoodAid | CCMedia ( Our Official Social Media Marketing Agency )
Leila Darabi @leila_darabi
2K Followers 3K Following Lead social impact at @MBoothHealth. Co-host @Cringewatchers with @LAdelman (Subscribe now! https://t.co/1qtfMYFHFO). @ppglobe @guttmacher alum. Views my own.
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
Nina Alfieri, MD MS F... @NinaAlfieriMD
512 Followers 660 Following Pediatrician | APD | Continuity Clinic Director | child health advocate @luriechildrens. Mother, Dog person, Chicagoan, Optimist, Good vibes found here. 🩺❤️💪
Ti-Lo @DrTitiFasipe
1K Followers 1K Following Sickle cell warrior and pediatric hematologist. Opinions are my own and not meant to be medical advice.
Alexis Thompson @DrAlexisThompsn
1K Followers 75 Following Pediatric Hematologist, advocate for patients with blood disorders, providers caring for them, researchers working to improve outcomes. All my personal views.
Barby Ingle Official @BarbyIngle
25K Followers 25K Following Candidate AZ House LD7 (#AZFirst #MAHA) | Proud wife of @KenRayTaylor | Entrepreneur, Author | Champion of #RareDisease & #ChronicPain | Join #IAm #NERVEmber
Dr. Nina L. Shapiro @drninashapiro
14K Followers 8K Following HYPE•ULTIMATE KIDS' GUIDE Contributor @Forbes Peds ENT Emerita @UCLA #EatSAFE, #mothercutter #ilooklikeasurgeon. OG blue check Tweets=mine. IG: @drninashapiro
Shondrella @Shondrella
54K Followers 2K Following God1st. Actor. p.g.a.Producer. WW Distributor and I'm Lafawnduh in Napoleon Dynamite 💋👸🏾 Book Me & Get Personalized Messages: https://t.co/55bO4Y7fwt
Sickle Cell Awareness... @awareness_cell
2K Followers 3K Following Dr Dexter's/CEO-SickleCellFoundatio /Aware the people for sickle cell.(work for decrease SickleCell Birth & SCD Mother Mortality).Sicklestory#Writer#Blogger
Ahmar U. Zaidi, MD (D... @drzsicklecell
5K Followers 5K Following #sicklecell advocate|blood doc for kids|podcaster|💊 development for sickle cell disease|@tedx speaker|views mine onlyYou might like
