Z. G. @SuperstringTx

views are my own United States Joined August 2011

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Z. G. @SuperstringTx

a day ago

👇 lnkd.in/gu4-vnk6 Let’s stop treating rare diseases as edge cases – and start seeing them as a shared priority. 👇 Have you worked on a rare disease? What’s one barrier you’d remove first? #RareDiseases #HealthEquity #PatientAdvocacy #DrugDevelopment #GeneTherapy

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Z. G. @SuperstringTx

a day ago

How can a class of diseases be called “rare” when it affects 350 million people? That’s the paradox at the heart of a talk I just came across – and it stopped me in my tracks. There are over 7,000 rare diseases.

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Z. G. @SuperstringTx

a day ago

My TEDx Talk dropped today on the YouTube channel, I am cordially inviting everyone in my connection to take a look and spread the word. 👇 lnkd.in/gu4-vnk6 The Not So Rare World of Rare Diseases

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Z. G. @SuperstringTx

a day ago

🎥 Please feel free to share the link below, having more people aware of the “not-so-rare” world of the rare diseases, having more people speaking about rare diseases, spreading the words as broadly as possible, as far as possible.

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Z. G. @SuperstringTx

a day ago

That shift in mindset is where hope could accelerate into action. If you work in drug development, diagnostics, genomics, or health policy, this talk is a powerful reminder of why we do what we do.

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Z. G. @SuperstringTx

a day ago

,“How do we build platforms, data infrastructures, and regulatory pathways that can scale across many rare diseases at scale?”

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Z. G. @SuperstringTx

a day ago

In this TEDx talk, I proposed the idea to reframe rare diseases not as isolated medical curiosities, but as a global health challenge – one that demands a different kind of thinking. Instead of asking, “How do we solve for one disease at a time?” – what if we asked

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Z. G. @SuperstringTx

a day ago

Yet the reality for most of these patients remains the same: 🔹 Years of misdiagnosis or no diagnosis at all 🔹 Few or no approved treatments 🔹 Limited awareness, even within medical systems 🔹 A profound sense of being invisible

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Z. G. @SuperstringTx

a day ago

Individually, each one affects a small number of people. But collectively? They impact more than 350 million individuals worldwide. That’s a population larger than the United States.

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小马 | 商业生存指南 @VibePonyAI

4 days ago

强烈推荐花3个小时看完，北京大学内部投资学习课程。投资必看！李录演讲：全球价值投资与时代时隔5年，李录这场160分钟的价值投资思想盛宴令人醍醐灌顶。

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Yüksel Ürün @DrYukselUrun

2 weeks ago

This is not simply a new pancreatic cancer drug. It is a reminder that even “undruggable” biology can become treatable with persistence. Daraxonrasib doubled median OS vs chemotherapy in RAS G12 metastatic pancreatic cancer: 13.2 vs 6.6 months. A remarkable ASCO moment. #ASCO26 @DrChoueiri @TiansterZhang @CathyEngMD @montypal @tompowles1 @brian_rini @cdanicas @GlopesMd @PGrivasMDPhD @nataliagandur @yekeduz_emre @neerajaiims @ASCO @ONCOassist @OpenMedicineHQ @MedwatchKate @scserendipity1 @CParkMD @urotoday @OncLive @crisbergerot @urologysummit @SuyogCancer @Larvol @IMG_Oncologists

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Jame Abraham, MD, FACP @jamecancerdoc

2 weeks ago

Absolutely practice changing!! One of the most stunning developments in the treatment of patients with metastatic pancreatic cancer !! It is one of the rare moments in oncology which you will always remember ! Like the imatinib, trastuzumab presentations @ASCO #ASCO26 @OncoAlert