Young Dementia Network @YoungDemNetwork
The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support. youngdementianetwork.org Joined December 2010-
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Our next webinar, on Wednesday 17th June 2026 at 12.30-1.30pm, will share emerging evidence from three research projects currently underway by the Working With Dementia Network Plus Research Team exploring #dementia and employment. Sign-up here: youngdementianetwork.org/news-and-event…
This recent Guardian article discussing the damaging stereotypes a dementia diagnosis brings, includes interviews with Julie Hayden, George Rook and Kate Swaffer, who are all living with young onset #dementia. They are all valued members of the Young Dementia Network. Read more here: theguardian.com/society/2026/j… @george_rook @KateSwaffer @julieha15141038
Have you heard of a carer's assessment? 🤔 If you're over 18 and caring for another adult, you have the right to a carer's assessment. Find out more: dementiauk.org/information-an… #CarersWeek
Today marks the start of #carersWeek - a week to recognise the importance of #carers and to highlight the support available to them. 💙 This week, we'll be sharing some things you may or may not be aware of that may help you in your caring role. We understand how vital dementia carers are, which is why we're here to support you: dementiauk.org/information-an…
@Lorenzos_House is a global organisation dedicated to empowering young people and their families who are affected by young onset dementia. It is hosting its sixth annual free virtual global youth SUMMIT on Friday 12th and Saturday 13th June 2026. Learn more here: lorenzoshouse.org/summit
This episode of the ‘Defy dementia’ podcast explores how to talk to children and young people about dementia in an age-appropriate, stigma-reducing way. 🎤 Angeleta Cox shares how she talked about her late mother’s diagnosis of young onset Alzheimer's disease to her children. Listen to the podcast here: open.spotify.com/episode/0gniuj…
A researcher at University of the West of England is starting a research project focused on improving support for people after a dementia diagnosis. They are setting up a group for people living with young onset dementia who are willing to share their thoughts and ideas to help shape and develop a new 'LivDem' course. Find out more here: youngdementianetwork.org/wp-content/upl…
Julie Hayden’s book, 'Living with young onset dementia,' is an accessible coffee table style book. 📖 Told through a combination of poetry and prose, @julieha15141038's words are brought to life through imagery by digital artist Daisy Vest. To purchase a copy, please email Julie at [email protected]. ✉️
A Bristol and South Gloucestershire initiative for people living with young onset #dementia has grown from a small walking group set up during the pandemic into a wide-ranging programme of social and activity-based meetups. For more information, click here: youngdementianetwork.org/about-the-netw…
It's not too late to get involved with Operation Ouch! 📹 The team is hoping to film a family in which a parent or grandparent is living with dementia and where a child or young person aged 7-15, who has a relationship with them, would feel comfortable sharing their experience on camera. In particular, they would love to hear from families from ethnic minority backgrounds. Find out more here: youngdementianetwork.org/wp-content/upl… (Photo credit: BBC)
Our webinar on Wednesday 17th June 2026 will share emerging evidence from three research projects currently underway by the Working With Dementia Network Plus Research Team exploring #dementia and employment. Sign-up here: youngdementianetwork.org/news-and-event…
Dementia UK is looking for a person living with #dementia who has experience or knowledge of its dementia specialist Admiral Nurses who would be willing to join its advisory group. For more information, click here: dementiavoices.org.uk/deep-groups-ne… @DementiaUK
Save the date: Dementia Forward has announced it will be holding its fourth annual U&ME conference titled 'Shaping the future of young onset dementia support' on Tuesday 20th October 2026 at York Racecourse. More details to follow when available... ⏳ @dementiaforward
UK Health Radio host Pete Hill recently interviewed author and dementia advocate Julie Hayden on his 'The 'D' Word' show. Julie was a social worker when she was diagnosed with young onset #dementia at the age of 54. Click on the headphones icon to listen to the interview here: ukhealthradio.com/blog/episode/t…
As part of Dementia Action Week, we are sharing the new short film 'Little Rock' from @YPWD. It tells the story of Lana, a teenager learning to live with her dad’s decline due to young onset dementia. 🎬 Watch the film here: ypwd.info/dementia-doesn…
A campaign to highlight the caring duties that fall on the families of people diagnosed with young onset #dementia launched in April 2026 on Radio 4's 'Woman's Hour' programme. The interview starts 15 minutes into the programme, which you can listen to here: bbc.co.uk/sounds/play/m0…
Today marks the start of Dementia Action Week. We're sharing Dementia UK's animation explaining 'What is young onset dementia', to raise awareness of the condition and how it affects younger people and their families. You can watch it in full here: youtu.be/F56nIVpDglQ?si…
If you are living with #dementia, the University of Worcester would like to hear your thoughts on personal care in a short online survey. This will help them ensure a book chapter they are writing around the experiences of people living with dementia with personal care includes the voices of people living with condition. 📄 You can find the survey and more information here: app.onlinesurveys.jisc.ac.uk/s/ucw/personal…
A new group has been set up in Essex to address a gap in support for younger people with #dementia. 👥 The Young Minds Dementia Group meets weekly on Thursdays from 2.30-4.30pm at the Stroke and Wellness Centre, 85 Frinton Road, Holland-on-Sea, Essex CO15 5UH. For more information about the group, click here: youngdementianetwork.org/wp-content/upl…
Our ID cards were created in collaboration with our members to make it easier for people affected by young onset #dementia to access support while out in the community. 🪪 There are two designs – one for people living with young onset dementia, and the other for family members and supporters. They are one of our most requested resources. Get your ID card now: youngdementianetwork.org/resources/youn…
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