Its ME Matina @justask
#MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia USA Joined July 2007-
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Hitting the Target? ME/CFS and long COVID T-Cell Researchers on Uncovering the Precise Drivers of the Illnesses healthrising.org/blog/2026/06/0… #MECFS #longCOVID
The thing that rarely comes up in regards to advocacy, funding allocation, disease burden with ME and Long COVID. How many people face this decision alone with their families? A desperate grasp to recover some dignity that the state has taken from them.
A video exploration of the impossible decisions ME/CFS patients have to make, constantly having to decide between two options that will both make our health worse. And how much more difficult these decisions get when they involve non ME/CFS medical needs. As well as thoughts on how to process these decisions… A more comprehensive essay of these ideas in writing is in the works for a future text post… stay tuned! 😊💙 ♿️ audio and text versions on my blog 👇 whitneydafoe.com/mecfs/?post=im… ——————— #mecfs #LongCovid #ChronicIllness #pwME #spoonie
Weekly Inspiration: Excerpts from My Book on Living with Chronic Illness - this blog post includes links to 8 short videos, where I read and discuss different chapters of my book, to help and inspire you with practical tips & emotional support: livewithcfs.blogspot.com/2023/09/excerp…
@Dan_Wyke @chydorina I said that from the start. If u ignore Myalgic Encephalomyelityou ignore and repeat history of clinical trial failure. One you need subsets and/or have the clinical study design to allow you to define subgroups. Millions of dollars wasted!
@HarrySpoelstra No Myalgic Encephalomyelitis the most complex than LC which is just as complex.
People living with disabling chronic illnesses are already some of the grittiest and most resilient people I know just to do basic things in life. I can’t imagine a reality in which the curative intervention would be to try to promulgate more of what they already have in spades.
I threw myself into psychotherapy and mind-body stuff like brain-retraining and meditation as soon as I was dx'd with 'Conversion Disorder' - by a Neurologist. It seemed highly unlikely to me that what was going on was 'psychological' and not simply post-infectious (given that I had had Dengue and did field work in the Tropics) but I had had some recent trauma related to student gun violence and thought maybe it was a mind issue. I was a tenured professor of Biology at the time - giving international invited talks and supervising dozens of students and teaching huge undergrad courses and small advanced graduate courses. I was publishing and getting grants and doing field work and working my ass off and loving it. Life was an adventure. For 3 years after the diagnosis I Iived and breathed meditation and CBT and GET and brain re-training. I followed doctors suggestions and took anti-depressants and anti-anxiety meds and later even antipsychotics. I was going to recover. There was simply no other option I was willing to entertain and if the experts said this was the way - well.... of course I jumped on the bandwagon. Having conversion disorder was a much better option than an incurable untreatable invisible mystery disease. Unfortunately, during this period I kept declining and finally I was bedridden and severe - unable to care for myself and had to move in with family and sell my house. I was in my mid 40s. It was not until I started treating my dysfunctional biochemistry, pathogens, mitochondrial dysfunction, and hypometabolism that I began to stabilize and my baseline began to increase. I wasted years on mind-body interventions - years that I could have spent focused on recovering from post-infectious dysfunction. I truly believe that if I had been given the right diagnosis to start I would not have declined to severe and lost my entire life. Its so crazy - its like these bozos think we didnt try all this stuff. Many if not most of us have tried everything - from God to psychedelics and everything in between.
It’s been around as the only option since I was a child with me/cfs I’m now 35 And I’ve done them Guess who is still bed ridden
@AnilvanderZee The notion that some of these patients would seriously benefit from brain retraining is something we’re not supposed to find insulting?
The full version with English subtitles: facebook.com/reel/976970015… #pwme #myalgicE #millionsmissing #severeME
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME
@RonChusid Yes for years before LC is Myalgic Encephalomyelitis! It’s been the same for decades way before LC. Until people get history of ME before they say LC is new. It’s not new. Learn the facts from #pwme
#MECFS is a “medical” and a “social catastrophe.” — Jörg Heydecke, founder of Germany’s ME/CFS Research Foundation. One patient waited 19 years for a diagnosis. Another said she was told her symptoms were psychological and that she needed to get on with it.
@CureLongCovid No it didn’t. myalgic Encephalomyelitis did!
📢 There is currently ZERO data-driven evidence that brain retraining is effective for patients with #LongCOVID vs. placebo. Read this again: ZERO. ‼️
@dysclinic In my country, there is now a university hospital where doctors recommend „brainretraining“. The same doctors who refuse to prescribe off label medication because „no evidence“. Can’t make this up 🤷♀️
5-star review: "As a physician who manages patients with chronic pain and other debilitating illnesses, I consider this book to be a must-read. Trust me: if you want to thrive in the midst of YOUR illness, read her book.” livewithcfs.blogspot.com/p/my-book.html
LA Weekly: How Emily Taylor Shaped Solve M.E.’s Catalyst Awards to Accelerate Breakthrough Research in ME/CFS and Long COVID Article about the Catalyst Awards, a program which funds ME/CFS and Long Covid research. laweekly.com/how-emily-tayl… #MEcfs #LongCovid
The failure of medicine is the denial of a clear-eyed assessment of the dire situation in which patients often find themselves, which leads to trivialization; lack of funding for research, clinical services, and social care; and therefore absence of cures. bmj.com/content/389/bm…
At #MillionsMissing, we made a significant breakthrough. The Office of the Surgeon General has committed to advocating for our community. This is a meaningful step toward the federal recognition that people with #MECFS & #LongCOVID deserve. More info: meaction.net/post/4-000-voi…
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Tom Kindlon @TomKindlon
15K Followers 621 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Hillary Johnson Autho... @oslersweb
4K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
@richardvallee.bsky.s... @richardvallee
3K Followers 4K Following I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Jennie Spotila @jspotila
2K Followers 379 Following Writer/ME Activist. We are more than our disease.
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Todd Davenport @sunsopeningband
13K Followers 4K Following Chief rapscallion & picaroon. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Winston Blick @winstoncb
3K Followers 805 Following
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Phoebe Boag @PhoebsBo
3K Followers 3K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
dragon master gold x @dragonmast54298
7 Followers 56 Following
Alex @Alex35389737118
1 Followers 71 Following
Nancy B @Aleyinizzz4
13 Followers 767 Following soft girl era, loud music phase 🎶 follow back guaranteed
Julie @_ME_Julie
1K Followers 1K Following It’s not about me. It’s about ME. ME/CFS 🦋 Now is the time to act. #Act4ME
OWEN @LeeAbcsportsg
360 Followers 669 Following
Hellen Brianna @hellen_brianna
1K Followers 3K Following Merry Christmas Eve Eve🎅🎄what’s your $cashapp tag or PayPal mail and be blessed💵🥳🎊🎉💯 if you believe in god ?
fxkorean123 @fxkorean12345
625 Followers 2K Following 이전 계정 fxkorean Come back again.. Korean. looking for friends and FWB or Fun 180 90 40 16cm Vers T... but mostly Top 🇰🇷👋❤️🙏👍
mannn @zzzz898888
57 Followers 1K Following
kevin5886 @kevin58861
0 Followers 115 Following
Andrew Neoh @neoh_andre34884
2 Followers 126 Following
Justin @Story0729Justin
262 Followers 4K Following
Sarah Barker @SarahBarx035
764 Followers 2K Following #SevereME #ModerateME #ME wildlife, soil,fauna,flora,
hi-Lucas_Ming TW @LucasMing3
204 Followers 1K Following 168/63/manly bmmessage me in the lind:chend1234 只喜歡屌不喜歡女生 100% btm
I.M Acora @IM_Acora
11 Followers 45 Following Fantasy, Thriller and Horror Author. I also love worldbuilding a lot! 3 published novels. get book-1 free at my official website landingpage
David Knudsen @knuddavid
10 Followers 329 Following
Olivia Smith @y73905
584 Followers 3K Following ⛪ Faith is more than just going to church. 👉 It’s a daily walk with God. #Jesus #FaithJourney #ChristianLiving
Malik C Carter @KCarter94271
73 Followers 2K Following GOD • KING • I Am LEGEND • Multi-Faceted Creator• Author • Influential Artist • Film Writer & Producer • Actor • Human Advocate •Warrior • Visionary Overseer
Tyler @Tyler71224858
98 Followers 2K Following
Dolapogrdt @Dolapogrdt100
149 Followers 117 Following Focused man who enjoys treating the right person well. Let’s enjoy life with no stress.💸🛍️
JJ @Kaizaku_Lodai
158 Followers 6K Following
David de Rothschild @BoyVideo39172
176 Followers 4K Following
Mr Dick u Down @woods_zerw27608
618 Followers 2K Following
E. M. @MarsAndBeyond_1
688 Followers 5K Following Helping humanity reach its full potential even on Mondays.💕🚀
DirkDiggler @LeoGrijalv11167
8 Followers 138 Following
Michael E. Conley @MichaelEConl1
390 Followers 4K Following U.S. Air Force | Leading with integrity, vision & valor. Committed to service, excellence, and innovation. God bless America🇺🇸 🚫Porn #AirForce #ServiceBefo
JAMES @CJamesMitc
980 Followers 7K Following 30 Years Experience as a Professional Trader,Entrepreneur/Real estate investor/ Speaker/Portfolio manager, pilot.
Henry @H_B_S_98
11 Followers 1K Following
Fazza Mohammed @FazzaMoham93602
142 Followers 8K Following
Sebastian Waldon @Bastosebby
6 Followers 284 Following
Xadurated @JayTix834
4 Followers 336 Following
BreizhPowerGirl @BreizhPowerGirl
743 Followers 3K Following Bretonne #CovidLong depuis le 13/03/2020… Une vie suspendue… 5 infections #Covid19 au compteur #covidlong #longcovid #ApresJ20 #EM #SFC #pwME #MPE.
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Anil van der Zee © @AnilvanderZee
10K Followers 890 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Tom Kindlon @TomKindlon
15K Followers 621 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
PwME 4 bioMEdical res... @ValeBodi
5K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/ gnarled Pacer
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Michael VanElzakker @MBVanElzakker
10K Followers 263 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Hillary Johnson Autho... @oslersweb
4K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
Whitney Dafoe @DafoeWhitney
12K Followers 87 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
#MEAction Network @MEActNet
19K Followers 2K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
@richardvallee.bsky.s... @richardvallee
3K Followers 4K Following I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Dysautonomia Intl. @Dysautonomia
26K Followers 354 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Kathryn @kadamssl
9K Followers 862 Following Past-Chair of the Women’s Caucus at CASWE-ACFTS, MSW, Long COVID research, therapist, equity advocate, intersectional feminist, mom. Tweets my own.
Hulu @hulu
2.2M Followers 1K Following From the LGBTQ+ stories that changed the world, to the ones that just changed us. Stream on Hulu. #HuluHasPride
AllsFairNews @AllsFairNews
361 Followers 53 Following Follow for news/updates about the upcoming legal drama ALL’S FAIR from Ryan Murphy. Coming this November on Hulu & Disney+ | 📧 [email protected]
New Heights @newheightshow
556K Followers 129 Following Next level access to life in the NFL with @jasonkelce & @tkelce. From @wonderymedia. New episodes on Wednesdays
David Fajgenbaum, MD @DavidFajgenbaum
14K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing CDCN and Every Cure | National Bestseller #ChasingMyCure https://t.co/26OS13etrF
Every Cure @EveryCure
2K Followers 225 Following We leverage #ai to unlock the power of each and every drug to treat each and every potential disease they possibly can. Inspired by @DavidFajgenbaum
Michael Peluso, MD @MichaelPelusoMD
6K Followers 73 Following Infectious disease doctor @UCSF. #LongCOVID researcher. #HIV clinician and #HIVcure researcher.
Vijay Iyer PhD @vijayiyer312
4K Followers 3K Following Org disclosures: volunteer @Ansyme_ & employed @MathWorks (maker of #MATLAB). The rest of me you can puzzle out 🧩. Tweets my own.
Dr. Sabine Hermisson ... @SabineHermisson
6K Followers 4K Following PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Alex Sprackland @AlexSprackland
2K Followers 2K Following Engineer. BMX. Powerlifter. Electronic music producer. Long Covid since March 2020 has put all that on hold, though 😓. https://t.co/NwtnfzoDjG
Flowerpower @jasminescottage
34 Followers 722 Following
Matt Lazell-Fairman @mfairma
1K Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
betsy ladyzhets 📊 @betsyladyzhets
5K Followers 1K Following journalist, editor/co-founder @thesicktimes | she/her/🏳️🌈 | better ways to contact me these days: [email protected], betsyladyzhets.25 on signal
EndMalnutritioninME @MalnutritionME
599 Followers 772 Following Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. https://t.co/fOkzoiJqv2
Emilio Baztarrica Nav... @EmilioBaztarri1
167 Followers 161 Following
José David Jarmell @JarmellJose
309 Followers 445 Following “It is the first responsibility of every citizen to question authority.” - Benjamin Franklin
No Trend @notrendstudio
678 Followers 581 Following https://t.co/apS4QlAdQK Long Hauler since August 2020, struggling
Long Covid Patient Ac... @LC_UK_Action
4K Followers 2K Following @LongCovidUK @longcovidactionuk.bsky.social @med-mastodon.com https://t.co/DlgXF9BQSe
Ness @nessau0
115 Followers 265 Following Vegetation ecologist. Manager of environmental research labs. On pause; MECFS/LC.
Scott Daniska @scott_scientist
3K Followers 573 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
@JohnVsJonVsME @JohnVsJonVsME
523 Followers 79 Following #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
JOwME @JohannaBorde
905 Followers 2K Following Designer・Architecture photographer・Art lover ・Mof2・ME/CFS since 2020
San Morales 🎗️�... @SanM52172826
2K Followers 8K Following Non citoyenne : ME/EM Endogirl Sopk Adenomyose Covidlong/persistente lyme 5 años calvario/pacientes en abandono calducha en alma Los 23 CampoM la 🎼🎹 ma vie
María Richardson @_diatoma
3K Followers 6K Following ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal
Auto Immunity @autoimmunity20
155 Followers 208 Following
Anna 🍋 LemonChalle... @annahhbella
2K Followers 4K Following MEcfs seit 2002, Diagnose 2022, Ü50 im Wechsel zum blauen Himmel: @ https://t.co/0XaIIu8D1D 💙MEcfs 💙pwME MEcfs 💙PEM 💙POTS 💙CleanAir 💙GreatestMEdicalScandal
Long Covid Moonshot @LCMoonshot
3K Followers 325 Following 18 million Americans suffering with Long Covid. ZERO treatments. We need a moonshot for Long Covid research funding!
Anna Madainn @songandjoy
785 Followers 3K Following Writer, post-academia. Christian. Lover of nature, poetry, children’s lit, kindness, and 18/19thC lore. Unruly heart, ME/CFS 22 yrs. Wholesome DMs only. 🪺
K3vin @Tr_K3vin
1K Followers 5K Following Unvaccinated Covid Long Hauler since 07/2020. Not anti vax. Just don't know if the vax will help or make things worse
Viv @StillViv
293 Followers 781 Following Biomedical engineer, mathematician, equestrian, thru-hiker. But now bedridden by severe ME, watching clouds #pwME Alive and thinking, albeit barely
ThorEd @JacEdhPf
395 Followers 1K Following #Longcovid seit 09/23 #PlötzlichIstAllesAnders #MECFS #PEM #POTS #CouchBettUndZurück
Elke Asen @ElkeAsen
2K Followers 3K Following Previously: MSc in Economics Student @LSEEcon & tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid/#MECFS
Dr. Amy Adams @NINDSdirector
7K Followers 297 Following Official Twitter account of Acting NINDS Director Amy Adams, Ph.D. part of @NIH. RTs are not endorsements. Privacy Policies: https://t.co/AlUPqyclot
Ishbel Frazer @ishbelfrazer
580 Followers 658 Following Life in limbo due to the #GreatestMEdicaScandal
UniteToFight @U2Fight_World
5K Followers 249 Following LongCovid & ME/CFS conference project. community-driven. independent. global.
Rebecca Ryan @DrRebeccaRyan
6K Followers 872 Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.
Junior @nolimitjuni0r
2K Followers 790 Following 23 year old long hauler trying to piece my life back together. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
Jim Jackson @DrJimJackson
5K Followers 2K Following Vanderbilt Psychologist. Author of "Clearing the Fog" (May 9, Little Brown Spark). Studies Post Intensive Care Syndrome (PICS) and Long Covid. Christ Follower.
ONG PEM @AsociacionPEM
2K Followers 1K Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]
Pete Caruso @PeteCaruso_
689 Followers 1K Following Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme. @petecaruso bsky social
Long Covid Commentary @LongCovidComms
3K Followers 3K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Harry Tsao @harrytsao
2K Followers 428 Following Entrepreneur. Sports & tech investor. @warriors @lafc @vivoaquatics @aXiomaticGaming @EpicGames
Zeest Khan, MD @doctor_zeest
5K Followers 280 Following Physician recovering from Long Covid helping others do the same. Check out my podcast and newsletter. 🔗: https://t.co/AJNaCIPsRc
Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.You might like
