Pat H 💙 @pathcath
35 years of ME/CFS. Former Westcare volunteer worker. Still waiting for biomedical research and better times. 💙 England Joined April 2010-
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Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the P etition! c.org/GPgjpz6xys via @UKChange
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Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the Petition! c.org/GPgjpz6xys via @UKChange
Pat H 💙 retweeted
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME
Pat H 💙 retweeted
An interview with Professor Chris Ponting, a geneticist at the University of Edinburgh, about the recently announced follow-up to DecodeME called Sequence ME & Long Covid: virology.ws/2026/05/31/tri…
Pat H 💙 retweeted
Thanks @darrenpjones for once again raising with @BristolCouncil the concerns of local residents about Cotham School’s latest CCTV application. Invasion of privacy & the impact on heritage parkland & protected trees all remain key concerns. c260 objections & no stmts in support.
Pat H 💙 retweeted
Clip from a BBC News aired in 2007 when two #MEcfs patients launched a court case against NICE and the guideline recommending graded exercise therapy. The judicial review was not successful. youtu.be/0uUxL9My1bc?si…
Pat H 💙 retweeted
“It made me much worse… Most people I know with ME have exactly the same experience with it.” Annette Barclay, a patient with #MEcfs, describing her deterioration following Graded Exercise Therapy.
Pat H 💙 retweeted
Guess who went downstairs to the garden yesterday morning🥹😍😭 Mum and dad made it happen (as did the wheelchairs, stairlift, ramp, bed, and spending the rest of the day and today in the dark sleeping & resting). It was bloody magical, I cannot explain how much it meant.
Pat H 💙 retweeted
Was it even Blue Sunday if I didn’t wear my staple blue tshirt 🤣 so weird to see the obvious changes.
Pat H 💙 retweeted
I was 11 when Mono evolved into #MyalgicEncephalomyelitis. I am 53 years old. I've been living a constantly deteriorating hell loop of pain, fatigue so debilitating that I'm frequently unable to find the energy to cook, let alone eat. #MECFS #PwME #ChronicPain #ChronicIllness
Today is #worldMEday and part of #MEawarenessweek I’ve had this horrific disease since I was 14yrs old. A fit, health and active teenager, until I got a severe gastric flu, and never recovered. For the last 7yrs in various ways my health has been declining, until near death
Pat H 💙 retweeted
Simon McGrath has written a really good blog on the new government-funded DNA sequencing work for #MECFS. Simon writes excellent, accessible blogs on #MECFS research, and is well worth a follow. I was happy to help out with the video. mecfsresearchreview.me/2026/05/12/dna…
DecodeME has received £4.75M in UK government funding to sequence 6,000 DNA samples. This is phase 2 of a wider project, to sequence 9,000 #MECFS samples and 9,000 #LongCovid samples. Full article in The Times: archive.ph/2026.05.11-213…
Pat H 💙 retweeted
I posted something positive about the SussexME group earlier in the week not realising all that they have done, I have taken it down but I’m sorry if I caused any offence, thank you for letting me know.
Pat H 💙 retweeted
Today is #worldMEday and part of #MEawarenessweek I’ve had this horrific disease since I was 14yrs old. A fit, health and active teenager, until I got a severe gastric flu, and never recovered. For the last 7yrs in various ways my health has been declining, until near death
Pat H 💙 retweeted
Happy Bank Holiday! Here's a tongue-in-cheek parody song about @Nigel_Farage accepting a massive gift from a cryptocurrency billionaire and then hiding from a BBC interview - to the iconic tune of the legendary @The_Proclaimers. We're calling it: "Five Million Quid" 💰🤑💰🤑💰🎶
Pat H 💙 retweeted
Psychiatry has caused a lot of delays and damage in the field of #MECFS. A lot of work needs to be done to undo harm from theories such as patients excessively resting, being afraid to exercise, or perpetuating their illness. Dr Nina Muirhead, interview in The Times (2020)
Pat H 💙 retweeted
“Having earned my living as an inventor and a thinker, having limits on my thinking is pretty awful.” Mark, a retired technologist, developed #MECFS after catching chickenpox in the mid-80s and gradually became more disabled. From BBC Lifeline: Action for ME
Pat H 💙 retweeted
So thankful to be home. Here’s a tiny glimpse into the last months admission. 6months of the last 10 spent in hospital. I sincerely hope I can be home a while now. Thank you for all your love. instagram.com/reel/DXhhgQIiJ…
I've donated to David Tuller's crowdfunder. Hope he gets enough to keep going. We still need him Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc crowdfund.berkeley.edu/project/49720?…
Pat H 💙 retweeted
Excellent piece in New Scientist on exercise research in #LongCovid and #MECFS. Highlights studies ignoring post-exertional malaise, the PACE trial, and comments from David Tuller, Tom Kindlon and Todd Davenport. Full article: archive.is/2026.04.22-142…
Pat H 💙 retweeted
Trudie Chalder, King's College London's mathematically and factually challenged professor of CBT, appears to be trying to define "recovery" downward: virology.ws/2026/04/03/tri…
Katy B @KatyBruce108
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610 Followers 509 Following ᥱριdᥱ꧑ιᥴ ꧑.ᥱ. ι᥉ ᥲ ρ᥆᥉t-ιᥒfᥱᥴtι᥆ᥙ᥉ ᥱᥒᥴᥱρhᥲᥣ᥆꧑ᥡᥱᥣιtι᥉ ᥴᥲᥙ᥉ᥱd bᥡ ᥲᥒ ᥱᥒtᥱr᥆᥎ιrᥙ᥉. ꧑ᥡᥲᥣgιᥴ ᥱᥒᥴᥱρhᥲᥣ᥆꧑ᥡᥱᥣιtι᥉ rᥱ᥉ᥙᥣt᥉ ιᥒ ᥲ ᥒᥱᥙr᥆꧑ᥙ᥉ᥴᥙᥣᥲr dι᥉᥆rdᥱr & ꧑᥆t᥆r dι᥉᥆rdᥱr
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Protact @protact_inc
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Dorothea @fiatluxV
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Avira Support @AskAvira
4K Followers 9 Following Supporting both English and German requests from our Headquarters: English: Mon-Fri 06:00-23:00 CET; German: Mon-Fri 08:30 - 17:30 CET.
Mary-Jane Kohler MT(A... @TruthAbout_ME2
3K Followers 5K Following Homebound former competitive swimmer & Medical Technologist w/35 years post-viral Myalgic Encephalomyelitis #pwME #LC ally 🌈ally,🌱 loves cats 🐱
Ben Claimant 💚 Joi... @BenClaimant
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@longcovidtheanswers @longcovidanswer
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Bill Clinton @BillClinton
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Ror Preston @RorPreston
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