shelley-lee waller @shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD Brisbane, Queensland Joined February 2011-
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@froggiestarship @crakeka1 No comment about 1 Nation voters made. The poster asked for proof of 5 degrees (still absent). Not elite - but working class. Just asked you to be kind and tell the truth. But I see now, the voters flocking to yr side bc you ‘win’ a debate by calling someone a retard. Well done.
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@crakeka1 @froggiestarship I’d say likelihood of someone completing 5 degrees who immediately reaches for name-calling/ad hominem - an ableist one at that - is statistically very low. Perhaps not paying attn in classes?
Always thought this…low BP (hypotension) may be even more highly linked to Alzheimers than high BP (hyper), according to study tho causality not yet determined. “It’s not surprising prolonged hypotension may impair brain function because ‘the brain is not getting what it needs.’
Multiple cardiovascular disease (CVD) subtypes are associated with an increased risk for Alzheimer’s disease (AD), with hypotension showing the strongest link. Results of a cross-sectional study, which included nearly 800,000 adults from the UK Biobank and the All of Us Research
@hjluks @GGShields Such as those related to Axial Spondyloarthritis active flares ups?
shelley-lee waller retweeted
Paper: thelancet.com/journals/eclin… Source: cortdoesscience
@useless_priest Oops, meant to read ‘without’ kneejerk…
@useless_priest A body failing to respond to low cerebral blow flows with a knee-jerk dump of adrenaline and heart rate increase, is not really physiologically better off is it?
shelley-lee waller retweeted
“Exposure to respiratory viruses before a baby’s first birthday — when immune systems are immature and before most childhood vaccinations — consistently predicted reduced earnings, education and health decades later.”
@Z3R0Gravitas Yup - we’re in northern half of Australia (Qld) where ‘winter’ is def a relative term.
@Z3R0Gravitas Yes, love the rain drops dance - casual phone shot from what’s flowering in Oz in wet wintery day today.
Good point here 👇 that all resonates beyond the thymus: “Sometimes the reason a field is underfunded is not that the question is unimportant. It is that the answer is inconvenient.”
A scientist spent 30 years studying an organ every textbook said was irrelevant. In 2026, two papers in Nature proved she had been right all along. The papers were not written by her. Her name is Noel Rose Mackay. She is a thymic biologist who has studied the thymus since the
shelley-lee waller retweeted
This is worth reading. Also relevant to #MECFS with breathlessness despite normal SpO2.
Your pulse oximeter says 98 percent. You still cannot catch your breath on the stairs. The reading is not wrong. It is answering a different question than the one your body is asking.
@AndrewG76201347 🤞 The lung specialist and the lung fx centre I visit has really good hepa air filters opposite each cubicle and wear masks 😷 in winter…but yes, n95
shelley-lee waller retweeted
"Neurologists are wrong about ME/CFS" and "ME/CFS belongs within neurology" are not opposing statements. ME/CFS is, at least to a substantial degree, a neurological disease. From a funding perspective refusing to engage neurology because neurologists were historically wrong, and in most cases still are, is like arguing that because astronomers once believed in a geocentric universe, astronomy should have abandoned the study of the heavens. The solution to decades of neurological neglect is not less neurology. It is more and better neurology. While patients should not be expected to carry this burden themselves during an appointment, bringing neurologists and neuroscientists into the field should be a core objective of charities, foundations, and organized advocacy. They should aim to increase the likelihood that neurologists and neuroscientists encounter the current evidence, questions, and observations that lead to scientific breakthroughs and changes in perspective. One way (the best one, imo) to do this would be to establish dedicated and exclusive ME/CFS funding calls spanning the full spectrum from basic neuroscience and neuroimmunology to translational neuroscience and clinical neurology. There is currently very little incentive to study ME/CFS for the relevant experts and this needs to change.
Excellent spinal CSF Leak paper.
To quantify the barriers to care spinal CSF leak patients face, the Foundation collaborated with @AndrewCallenMD and @DanielM737 on a patient survey and paper. We are thrilled to share that it has been accepted by @TheAJNR! Abstract here: ajnr.org/content/early/…
shelley-lee waller retweeted
𝐅𝐨𝐫 𝐲𝐞𝐚𝐫𝐬, 𝐩𝐚𝐭𝐢𝐞𝐧𝐭𝐬 𝐡𝐚𝐯𝐞 𝐝𝐞𝐬𝐜𝐫𝐢𝐛𝐞𝐝 𝐭𝐡𝐞 𝐝𝐞𝐯𝐚𝐬𝐭𝐚𝐭𝐢𝐧𝐠 𝐢𝐦𝐩𝐚𝐜𝐭 𝐨𝐟 𝐬𝐩𝐢𝐧𝐚𝐥 𝐂𝐒𝐅 𝐥𝐞𝐚𝐤𝐬 𝐍𝐨𝐰, 𝐭𝐡𝐞 𝐞𝐯𝐢𝐝𝐞𝐧𝐜𝐞 𝐢𝐬 𝐜𝐚𝐭𝐜𝐡𝐢𝐧𝐠 𝐮𝐩. #SpinalCSFLeakAwarenessWeek
shelley-lee waller retweeted
What a beautiful, stunning, brilliant example of a human. He spent most of his life trying to make others' lives, and the world, better. The world is a better place for him being here Travel well, good sir abc.net.au/news/2026-06-0…
@DeborahBollyn @InocaInternati1 @heart_spasms @INOCA_belgium Thanks for sharing.
So well described for women ~> unusual warning signs of heart attack. As someone w POTS/hEdS/AxSpa I’d say, jaw pain (TMJ), nausea, fatigue and ache between shoulder blades sounds like my every day! I hope to heck the sx do feel ‘different’ if they ever arrive!!
I'm a cardiologist. A 42-year-old mother of two came to my office complaining of jaw pain and crushing fatigue. She ran half-marathons. Her EKG was normal. Another doctor had sent her home with anxiety medication. When I got her into the cath lab, I found severe microvascular
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr. Deepti Gurdasani @dgurdasani1
122K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Tracey Spicer AM GAIC... @TraceySpicer
54K Followers 2K Following Global keynote speaker on AI ethics. 2x Walkley Award winning journo and author. Long-time TV news anchor. Buy Man-Made here: https://t.co/CbAXnPUdt6
Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Winston Blick @winstoncb
3K Followers 805 Following
Sam Connor @criprights
19K Followers 5K Following human + disability rights activist | bolshy diva | trans rights = human rights | disability consultant | views are my own | sam-i-AM | antifa
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Alan Baxter ♛ @AlanBixter
54K Followers 25K Following @[email protected] Immunologist. Tweets represent personal opinions. Suggestions do not constitute medical advice. I’m here live, and I’m not a cat.
Todd Davenport @sunsopeningband
13K Followers 4K Following Chief rapscallion & picaroon. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Tracey Burgess @TraceyABurgess
4K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Sue J @SMpwrgr
6K Followers 3K Following Our challenge: accept reality, then never stop working to change it *more thoughts at https://t.co/fxKpIr6JnQ
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Jeffery Carl @nztin69489476
161 Followers 4K Following Some call it plastic surgery; I call it an investment in happiness. 💰💐" PLASTIC SURGEON🥼
Reeves Elon @ReevesElona3yu
53 Followers 708 Following
John YaYa @vineywoods
339 Followers 69 Following
Katie Cat @KatieCat1110246
13 Followers 474 Following
Swiftsandswallows @Swiftsswallows
1K Followers 2K Following @swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Margita Kleye @margita_kleye
27 Followers 370 Following
Paul Ruijgrok @PaulRuijgrokLC
114 Followers 281 Following Long hauler since Nov 2023. Writing a book on Fasting for Long Covid & Long Vax. Background in CS & Corp Finance. Looking for beta readers (please DM)
Liam's LC/ME Journey @liamsLCjourney
2K Followers 249 Following Open sourcing my Long COVID/ME recovery journey: lab results, doctor's visit summaries, tricks I've found for getting treatments, etc.
Atanas G. Atanasov @_atanas_
128K Followers 111K Following Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🍉🍋 😷🩼🇱... @MsJacksonNM
551 Followers 2K Following COVID realist 😷💜 Accomplice 🏳️⚧️🏳️🌈 who loves to retweet #WearAMask #CovidIsAirborne (she/they) abolitionist … header by @CourtneyAhnDesign on IG!
jelloNcarrotsINcognit... @wellsjdan
2K Followers 4K Following Follower of Jesus Christ. Member of the Church of Jesus Christ of Latter-day Saints. @LDS. Mormon. Wife and Mother. Love dogs.
Natalie @nataliezzz3
295 Followers 692 Following Sharing info on the connection between obstructive sleep-disordered breathing (UARS/OSA) & ME/CFS & related disorders. Tweeting about iatrogenic harm @PSSD_Info
Jan @Jan995783030021
33 Followers 2K Following
Alice Burchfield @ABirch111
38 Followers 577 Following
Lina Stargirl @Onsilinaaa
200 Followers 2K Following Hello, I`m a thief, and I`m here to steal your heart.
Peter Frederick 🐸�... @pjfred60
929 Followers 1K Following Mastodon @[email protected] & Bluesky @pfred60 Get vaccinated, wear a N95 mask 😷. IT Professional. Possums. Tweets are all mine & reflect my views.
Seth MacFarlane @SethMacFar99256
10 Followers 3K Following Go check out my new album "Lush Life: The Lost Sinatra Arrangements" out now!
Wunderlust @Wunderlust_100
389 Followers 2K Following Lately, I ask myself. Where have all our white knights gone? Where are all the heroes? Maybe, I'm just searching for an answer for the world's pains.
Amy Breau @MonAcadie
79 Followers 1K Following
Evelyn @Evelyn459350439
8 Followers 210 Following
Carrie My Several Wor... @globetrotteri
6K Followers 1K Following 9 biologics later 🎨 Author & Artist MySeveralWorlds I write about #Disability #Arthritis #axSpA #Fibromyalgia #MECFS #ChronicPain 🤝 @spondylitis @teamfibro
Elon Musk private cha... @Elonmusk938363
160 Followers 3K Following Elon Musk. Founder CEO and chief engineer of architect and spaceX 🚀🚀
Julian Lennon @Julianlennon625
48 Followers 899 Following
Kevin conster @KevinConst98370
141 Followers 2K Following
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
PEM15 @RattusFlattus
1K Followers 4K Following PhD not md. Disabled academic, animal enthusiast #pwme , vax injured and fuck you no I’m not an “anti vaxxer”. fuck the cdc covid isn’t over
SZ @zpisces2
1K Followers 7K Following ✨Stuck in a void temporarily🦋Gardener🌱IG:@botanical_panacea🌈One time interviewer🎤Former Dem 🌿Mom/Wife/Jew ✡️🇮🇱🇺🇦🦀🦅#GoBirds #LongCovid #Zionist🟦
☮️Kinderrechte �... @_Kinderrechte_
19K Followers 20K Following AfD-Verbot jetzt! Kinderrechte. Kinderschutz. Demokratie. Antifaschismus. #NoAfD Meinungen Anderer sind nicht meine. @AVachssZitateDt @ThomasKnorra
Tamara C @tamararivc
862 Followers 241 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
Sharon Cohen @SharonC97936831
2K Followers 8K Following UW-Madison; Tulane; LSE. ME/CFS (neuroimmune). NIH studies to date - Weill Cornell; Cornell; and 3 Stonybrook. Great niece - Sgt Cohen togetherwefight
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #pwME #POTS #LongCovid #CovidLongue #CovidLong #IACI #MaskUp #CleanAir
a tired human @saffronandsky
3K Followers 2K Following disability justice💜. Mod chronic illness for decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Jones Morrison @jonesmorrison78
69 Followers 6K Following A man with a heart of gold and a God-fearing individual who works hard for his boys and loves what he does for a living
Dr 'Variant of Concer... @drstip
3K Followers 5K Following Trust me, I'm a doctor. But not THAT type of doctor. I am licensed to zap people legally, huzzah! living on Whadjuk land. She/Her ☢️☠️🧶
Alex @alexandrer81988
1K Followers 2K Following
Morgan Jim @MorganJim101
67 Followers 840 Following
Prof Tosin @Proftosin9909
9 Followers 249 Following I’m a man of value,integrity and I get paid for being me🔥
KTSJ @KTSJ291498
306 Followers 5K Following ? everything. no filters. vet. not. a fan of. trump. DOS. USPS. college grad. retired. fucc. GOP. and. MAGA.
Bryan Blessey @BryanBlessey
5K Followers 5K Following Aspiring screenwriter/actor, including VoiceOver. Just a guy doing his best to do ( and be) better today than yesterday. #TeamPete
DarlingGirl @kbXf4CwmfCb2D0
9 Followers 1K Following Melb honey sticky lick my bits with your desire
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
212K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Eric Topol @EricTopol
773K Followers 674 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Putrino Lab @PutrinoLab
36K Followers 407 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Christoph Ströck @cstroeckw
9K Followers 773 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dr. Deepti Gurdasani @dgurdasani1
122K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
ME/CFS News @MECFSNews
14K Followers 676 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Kerryn Phelps AM @drkerrynphelps
68K Followers 2K Following GP, Adj Professor NICM, author, fmr MP for Wentworth, fmr Sydney Deputy Lord Mayor, health & civil rights advocate,Past President AMA,past pres @AIMA_Au
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Raina MacIntyre @Globalbiosec
37K Followers 548 Following Physician. Field Epidemiologist🔎 Expert in prevention, detection and response 2 epidemics and pandemics. Founder of @Epiwatch_BSP 🇦🇺
Prof Brendan Crabb @CrabbBrendan
30K Followers 1K Following Medical researcher & Director & CEO @BurnetInstitute & Chair @ausglobalhealth & @PacificFriends | also @BrendanCrabbAC & https://t.co/5BaDvLZ2Tw
David Joffe MB BS (Ho... @DavidJoffe64
18K Followers 2K Following Respiratory Physician with expertise in NIV Sleep and Respiratory Failure. Visiting Medical Officer. Intelligence Group Respiratory ACI. Advisor to WHN for LC
Dr Elisa Perego @elisaperego78
36K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Bendy by Birthright @gymrat_bookworm
1K Followers 1K Following A healthcare administrator--but a cool one. Bodybuilder recovering from hEDS-related complications who's helping fellow companions navigate the system!
William Aird @WilliamAird4
31K Followers 323 Following Professor of Medicine at Harvard Medical School #Hematology #MedEd Founder of @TheBloodProjec1
Alberto Giraldo @alb_giraldo
6K Followers 510 Following MD, Rheumatologist. Sacred art fan, tireless traveler and proudly Peruvian 🇵🇪
Natalie @nataliezzz3
295 Followers 692 Following Sharing info on the connection between obstructive sleep-disordered breathing (UARS/OSA) & ME/CFS & related disorders. Tweeting about iatrogenic harm @PSSD_Info
NCNED @NCNEDResearch
184 Followers 39 Following Australia’s peak Research Centre for ME/CFS, long COVID, and Gulf War Illness based at Griffith University on the Gold Coast, Queensland.
Dr Nathan Keiser @DocKeiser
2K Followers 164 Following Founder of The Keiser Clinic | Chiropractic Neurologists Specializing In #POTS, #Dysautonomia, #Concussion & Neurological Disorders Get your free POTS Roadmap👇
Jason S Knight @jasonsknight
5K Followers 2K Following rheumatologist 🧩🔍 | researcher of #antiphospholipid syndrome, lupus, COVID-19, diabetes, neutrophils, NETs 🕸️👀 | shoutout to Sparky the beagle 🗣️🐶
Ankylosing Spondyliti... @ASInfoShare
205 Followers 6 Following Information about Ankylosing Spondylitis
Spondylitis.org @spondylitis
8K Followers 1K Following A Nonprofit Organization dedicated to the quest to cure ankylosing spondylitis & related diseases, and empowering all affected to live life to the fullest.
Brad Cohn @BradCohn
15K Followers 1K Following Realizing magnificent visions with unbounded energy. Having fun @trybloo
Kelly Boesch🏳️�... @kellyeld
18K Followers 2K Following Digital and ai artist, enthusiast, creator, designer, music lover and animal lover.
Tamara C @tamararivc
862 Followers 241 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #pwME #POTS #LongCovid #CovidLongue #CovidLong #IACI #MaskUp #CleanAir
Jon Douglas @atranscendedman
8K Followers 911 Following Transparent to the transcendent. https://t.co/CWYWYqGwm3
Lalani Carlton Jones @NeuroradLal
2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
ICanCME Research Netw... @ICanCMEResearch
721 Followers 378 Following The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Mark Mamlouk @MarkMamloukMD
3K Followers 300 Following Neuroradiologist @KPSantaClara | Volunteer faculty @UCSF | Interests: #CSFleak #vascularanomalies #pedsneuro #HNrad
Andrew L Callen MD @AndrewCallenMD
2K Followers 410 Following Associate Professor, Neuroradiology and Neurology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak
CSFLeakMatters @CSFLeakMatters
517 Followers 954 Following There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
Dan Scoffings @brainscandan
911 Followers 420 Following Consultant neuroradiologist & Clinical lead for neuroradiology @CUH_NHS | Special interest in #SIH and #spinalCSFleak
WouterSchievink @WouterSchievink
2K Followers 87 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
Tomas Dobrocky @TDobrocky
561 Followers 197 Following Neurointerventional Radiologist. University Hospital Bern, Switzerland @StrokeBern
Spinal CSF Leak Found... @spinalCSFleak
3K Followers 526 Following A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks.
Monica Verduzco-Gutie... @MVGutierrezMD
26K Followers 7K Following Professor & Chair of Rehabilitation Medicine in SATX | #Physiatry #LongCovid | brain doc, mom, runner | my ideas
Long COVID Physio @LC_Physio
2K Followers 385 Following Long COVID Physio is an international peer support, education and advocacy, patient-led association of physiotherapists living with Long Covid.
ME/CFS Science @mecfsskeptic
6K Followers 485 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Derya Unutmaz, MD @DeryaTR_
337K Followers 8K Following Professor scientist, immunologist, biomedical engineer & Biohacker. ALL IN ON AI ! #Longevity #BioAI #Codex #Robotics #Space #Scifi #Singularity #trekkie 🖖
Dana Herbert @danaherbert
4K Followers 4K Following Dx: #MECFS #Narcolepsy #hEDS #cPTSD #ANA+ #AorticAneurysm #PinealCyst #Dysautonomia #Granulomas How I survived a tough CT dentist. Receipts + full timeline 👇
Tina Katsaros @tinakatsaros
1K Followers 246 Following PhD candidate researching ME/CFS at La Trobe University
Simon Maechling @simonmaechling
65K Followers 4K Following PhD Chemist | Innovation | Science | Explaining complex science without the nonsense. Conversations that inform.
sikandar adwani @SikandarAdwani
6K Followers 480 Following 🧠 Neurologist ( Gold Medalist) | 📺 Host of "Grey Matters" on you tube | Advocate for Brain Health and Awareness 🌟 Inspiring Minds, Empowering Communities
Tobias Hadlich @TobiasHadlich
190 Followers 52 Following General practitioner. Theories didn’t make sense. So I built one—with AI, neurodivergence, and resonance. #HFRT #Mind #Neurodiversity #AI
Complex Disorders All... @CODA_research
744 Followers 193 Following The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
Spinal CSF Leak Canad... @SpinalCSFCanada
979 Followers 381 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
CSF Leak Association @csfleakuk
1K Followers 936 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Aravind Palraj @Rheumat_Aravind
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